Every year on 28 February – and on 29 February in a leap year – we mark Rare Disease Day. It’s a day when we join together worldwide to raise awareness and generate change for people living with a rare health condition.
While haemophilia is rare, some other bleeding disorders are even rarer. On Rare Disease Day we take the opportunity to share personal stories from people living with rare bleeding disorders and the particular issues and challenges they face.
Rare Disease Day was created in 2008 and is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.