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HFA National Survey, Congress reports, Jasmin & Lincoln’s Red Cake Day story and more in this month’s newsletter

Neill shares his experience growing up with haemophilia in the 1950s and 60s, changing treatments, building a career, travelling, and living a full life

On this day we join with the global effort to eliminate viral hepatitis by 2030. At the same time, it’s a reminder that hepatitis C and liver health remain important issues for our community

Why we need a GP, eating healthy with a bleeding disorder, and Neil’s story are all shared for Men’s Health Week

Michael Wilson, a dietitian working at the Royal Brisbane and Women’s Hospital, shares his advice for healthy eating when you have a bleeding disorder

Nine young Aussies with bleeding disorders share their experience at WFH World Congress in Malaysia

New HFA President, Alan Dursun, introduces himself and his goals for the Australian bleeding disorders community.

The 2025-26 funding round for the Damon Courtney Memorial Endowment Fund (DCMEF) is now open

The Conference starts this week! We can’t wait to see everyone in Brisbane

See what’s on at the Australian Bleeding Disorders Conference 2025

Read about the WFH Comprehensive Care Summit, World Haemophilia Day and our upcoming conference

Find out what’s on for the Australian Bleeding Disorders Conference 2025

How your Haemophilia Treatment Centre can support you over your lifetime and ensure your wellbeing and best outcomes from treatment and care.

In October 2024 we came together to raise awareness about haemophilia, VWD and other rare bleeding disorders.

Heading to the end of the year, we review our progress. Gene and emerging therapies are on the agenda, and Bleeding Disorders Awareness Month is coming up.

Glanzmann thrombasthenia is a very rare hereditary platelet function disorder that affects the way that platelets work in the body.

The Australian Haemophilia Centre Directors’ Organisation (AHCDO) has a new committee and had a successful education day discussing women, VWD and gene therapy.

The team has changed recently at HFA. Natashia Coco has taken on the role of Executive Director (Acting) and we welcome Pauline Hill as our Digital Communications Manager.

The 2024 funding round for the Damon Courtenay Memorial Endowment Fund (DCMEF) is now open.

As a FIFO, what do you need to think about to manage your bleeding disorder when you are onsite?

Another exciting year ahead and the HFA staff have hit the ground running in 2024.

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth talks about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Allison was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.