In this section:
Our guide has been developed to help parents understand all the issues they will encounter when their child is diagnosed with haemophilia. It was designed with the input of parents of small children with haemophilia and includes their tips and helpful comments about their experiences.
It includes:
- downloadable fridge cards with an emergency checklist and how to recognise a bleed
- explanations about haemophilia, what causes it, symptoms and severity
- inheritance, families and having children
- managing and preventing bruising and bleeds, treatment
- growing up, child care, going to school, siblings
- exercise and sport
- support and services