Globally 1 in 1,000 people has a bleeding disorder. Most are not diagnosed and do not receive treatment.
Every April 17, World Haemophilia Day is marked worldwide with the goal of increasing awareness of haemophilia and other inherited bleeding disorders. This is a critical effort – with increased awareness comes better diagnosis and access to care for the millions who remain without treatment.
World Haemophilia Day was started in 1989 by the World Federation of Hemophilia (WFH) who chose to bring the community together on April 17 in honour of WFH founder Frank Schnabel’s birthday.
In 2016 HFA celebrated World Haemophilia Day to support the WFH goal of Treatment for All.
WFH developed an interactive World Hemophilia Day website to invite people from around the world to connect with each other and share their photos, stories and thoughts on how to achieve Treatment For All – www.worldhemophiliaday.org
HFA staff had a morning tea to celebrate the day and shared our support on the World Hemophilia Day website with other people from around the world.
Together with other landmarks from around the world, AAMI Park in Melbourne, Perth Bell Tower and the Brisbane Storey Bridge turned red on Sunday 17 April to celebrate being united in support. Next year we are hoping to get all states and territories involved.
Bell Tower, Perth
Storey Bridge, Brisbane
AAMI Park, Melbourne
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