FROM THE NATIONAL BLOOD AUTHORITY AND HFA MYABDR TEAMS
Some people are coming back to using MyABDR after being on a clinical trial or starting to use MyABDR for the first time. What tips do regular MyABDR users have for new users? Michael, a MyABDR user from South Australia, had this to offer:
My favourite features are:
My tips for new users or people coming back to it are:
As part the ongoing work to improve MyABDR, HFA and the National Blood Authority (NBA) regularly seek feedback from MyABDR users about changes they would like to see to the app or website. You may recall, for example, the MyABDR user survey in June-July 2017. These become “change requests”.
Change requests can also come from other sources. For example, users can give feedback directly to the MyABDR Support Team or HFA or local Foundations, who then pass them on. Haemophilia Treatment Centres (HTCs) can make recommendations based on their patients’ experiences. There are also change requests from the NBA to deal with bugs, data reporting, security and functionality issues.
These change requests go through a process of assessment and prioritisation with input of representatives from HFA and HTCs, as well as technical review by developers and business analysis at the NBA. HFA also has a MyABDR focus group of users who sometimes provide feedback on specific requests or proposed solutions.
During this process, the proposed changes are reviewed for approval by the Australian Bleeding Disorders Registry Steering Committee. The Committee’s membership includes the Australian Haemophilia Centre Directors’ Organisation, HFA, the NBA and a federal and state government representative. It deals with issues such as privacy, ethics, data accuracy and system development.
You will be pleased to hear that – with a lot of work behind the scenes to assess the current change requests – more improvements are planned for MyABDR over the next 18 months.
The NBA has compiled a list of change requests and new functionality/enhancements and will commence a project to update the MyABDR system in latter half of 2018 and 2019.
Stay tuned for more details!
Don’t forget that the MyABDR Support team is always happy to help you with any problems, and can make a time to get back to you if that suits you.
They are available 24 hrs, 7 days a week.
T: 13 000 BLOOD / 13 000 25663
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