The official launch of the MyABDR app and web site makes Australia a world leader in e-health technology for people with bleeding disorders, said the Assistant Minister for Health, Senator Fiona Nash.
Launching MyABDR in Canberra on Friday 21 March 2014, Senator Nash described the smartphone app and web site as “globally unique”.
“MyABDR enables people with bleeding disorders and their carers to record bleeds and their home treatments in real time,” said Senator Nash.
“These details are immediately listed on their clinical record in the Australian Bleeding Disorders Registry (ABDR) and accessible by their clinicians. This enables clinical staff in supporting hospitals to provide more timely and targeted clinical care to improve health outcomes for their patients.
“The launch today of the MyABDR app is therefore another significant step in improving health care for people with bleeding disorders in Australia.”
The MyABDR app and web site are the result of a collaboration between Haemophilia Foundation Australia, the Australian Haemophilia Centre Directors’ Organisation (AHCDO) and the National Blood Authority (NBA) on behalf of Australian governments.
In the 2011 Annual Meeting, HFA Council Delegates unanimously proposed to approach AHCDO and together explore the feasibility of adopting a national system for patients to record their clotting factor usage. They recognised that the system would need to have a number of options, both online and print-based, depending on people’s access to technology but wanted to make sure it was universal, patient-controlled and simple. HFA and AHCDO then approached the NBA to provide the technology for the system.
The NBA developed the app and web site to link in with the existing Australian Bleeding Disorders Registry (ABDR) system in close collaboration with people with bleeding disorders and parents/caregivers and clinicians, including haematologists and haemophilia nurses, physiotherapists and social workers and counsellors.