News - Haemophilia Foundation Australia

World Haemophilia Day 2024

17 April 2024

HFA & Foundation news, World Haemophilia Day

Today is World Haemophilia Day. Every year on 17 April, World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and other inherited bleeding disorders. This is a critical effort since with increased awareness comes better diagnosis and access to care for the millions who remain without treatment.

March 2024 National Haemophilia now available

20 March 2024

The March 2024 National Haemophilia is now available to read on our website. In this issue we highlight World Haemophilia Day, Rare Disease Day, Glanzmann thrombasthenia, women and peer support, FIFO workers, and mental health.

DCMEF Awards now open

18 March 2024

The 2024 funding round for the Damon Courtney Memorial Endowment Fund (DCMEF) is now open.

International Women’s Day 2024

8 March 2024

Today we celebrate the women in the bleeding disorders community – whether they’re women with bleeding disorders or mums, partners, daughters, sisters, nurses, doctors, social workers or counsellors, physios, researchers, or carers. Thank you for being part of our community and advocating for us!

Rare Disease Day 2024

29 February 2024

Today is Rare Disease Day – a rare leap year day and very fitting for a worldwide event to raise awareness and generate change for people with rare diseases.

PROBE Australia Study Update

25 January 2024

We are building evidence about the needs of men and women affected by haemophilia in Australia.

Welcome to our new website

18 January 2024

HFA & Foundation news

HFA has a new website! You'll find all of the same great content and information, but in brand new packaging. Over the past 12 months we've been working hard with the team at Heartburst to modernise the HFA website. We have great plans for new features to be added in 2024, so please be patient with us while we're in the process of developing them.

Season’s Greetings 2023

19 December 2023

HFA & Foundation news

The HFA Council and Staff wish you a happy and safe festive season. The HFA office will be closed from noon on Friday 22/12/2023 and reopen on Monday 8/01/2024. Should you have any queries or need to contact HFA please call 03 9885 7800 or email hfaust@haemophilia.org.au. Messages during that time will be monitored.

December 2023 National Haemophilia now available

11 December 2023

The December 2023 National Haemophilia is now available to read on our website. In this issue we share reports from the Conference - new haemophilia therapies, including gene therapy, VWD, women and girls, mild haemophilia, getting older and youth. There are great photos from our community celebrating Bleeding Disorders Awareness Month. We reflect on HIV today for World AIDS Day. And we say goodbye to our Executive Director, Sharon Caris.

Postcards for Sharon

6 December 2023

HFA & Foundation news

After 22 years of service, on the first of November we said farewell to our Executive Director, Sharon Caris. To show how much we appreciate everything she has done for our community, we invite you to write a message to her.

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