Rare Diseases Day

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Rare Disease Day will be celebrated on 29 February 2020. Its aim is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

Did you know there are 300 million people living with a rare disease around the world? Haemophilia and VWD are two of the 6,000 rare diseases out there and we’re as strong and proud as ever! Help celebrate Rare Disease Day today.

Go to the Rare Disease Day website to find out more and to find events in Australia.

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Rare Disease Day 2024

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Today is Rare Disease Day – a rare leap year day and very fitting for a worldwide event to raise awareness and generate change for people with rare diseases.

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