Today is World Haemophilia Day.
Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and other inherited bleeding disorders. This is a critical effort since with increased awareness comes better diagnosis and access to care for the millions who remain without treatment.
This year the international theme is “Access for All: Prevention of bleeds as the global standard of care”. The aim is to improve access to treatment and care with an emphasis on better control and prevention of bleeds for all people with bleeding disorders. Access to treatment prophylaxis given at home can greatly improve quality of life for people with bleeding disorders.
The World Federation of Hemophilia, with the support of volunteers from around the world, does remarkable work to improve access to diagnosis, treatment, care and support for people with bleeding disorders. Learn more about the WFH Humanitarian Aid Program.
Haemophilia Foundation Australia is a WFH member organisation and many Australian volunteers have been involved with WFH programs. HFA has supported many programs over the years and participated in the WFH Twinning Program and various committees that work to achieve the objectives of WFH.
In Australia, our community is fortunate to have access to a range of treatments, care and services. During recent times, some new haemophilia therapies available in Australia have led to fewer or no bleeds and greatly improved the quality of life of those who have been able to use them. We look forward to more novel therapies in the future for everyone.
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World Haemophilia Day Activities
Get everyone involved in raising awareness for World Haemophilia Day with the print-at-home colouring in sheet, or test your knowledge of bleeding disorders with the quiz. You can also update your profile picture on social media to show your support.
Light it up Red
We have many locations and landmarks over Australia Lighting up Red in support of World Haemophilia Day. Head out to a landmark near you, take a pic and share it with us on our social media platforms.