References

Australian Bleeding Disorders Registry. Annual Report 2024-25. Canberra: National Blood Authority, 2025. [PDF, 2.1MB]

Australian Bleeding Disorders Registry. Addendum to Annual report 2015-16. Canberra: National Blood Authority, 2017.

Haemophilia Foundation Australia. A guide for people living with von Willebrand disorder. Melbourne: HFA, 2010.

Lillicrap D, James P. Von Willebrand Disease: an introduction for the primary care physician. Treatment of Hemophilia, No 47. Montreal: World Federation of Hemophilia, 2009.

National Blood Authority; Australian Haemophilia Centre Directors’ Organisation. Evidence-based clinical practice guidelines for the use of recombinant and plasma-derived FVIII and FIX products. Canberra: Australian Health Ministers’ Advisory Council, June 2006

National Heart, Lung and Blood Institute. The diagnosis, evaluation, and management of von Willebrand Disease. Washington, DC: National Institutes of Health, US Department of Health and Human Services, December 2007

Your guide to von Willebrand Disease. Washington, DC: National Institutes of Health, US Department of Health and Human Services, January 2008

Some information and images adapted from:

Page D. All about von Willebrand Disease… for people with von Willebrand Disease and their families. 2nd ed. Montreal: Canadian Hemophilia Society, 2007.

What is von Willebrand disease? Montreal: World Federation of Hemophilia, 2008.

ACKNOWLEDGEMENTS

Many thanks to the HFA VWD Consumer and Health Professional Review Panels for their suggestions on topics and content to include.

This information was reviewed by Penny McCarthy, Megan Walsh and Salena Griffin from Australian Haemophilia Nurses’ Group; Leonie Mudge, Peter VanderLinden and Sharon Hawkins from Australia/New Zealand Haemophilia Social Workers’ and Counsellors’ Group; Wendy Poulsen and Matthew Stewart from Australian and New Zealand Physiotherapy Haemophilia Group; Dr James Daly, Dr John Rowell and Dr Simon McCrae from Australian Haemophilia Centre Directors’ Organisation; and VWD community representatives from the HFA VWD Consumer Review Panel.