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New VWD fact sheet
Find answers to your FAQs about von Willebrand disease (VWD) in our new fact sheet – symptoms, types, inheritance, diagnosis and treatment.
New haemophilia booklet
The new HFA Haemophilia booklet is now available. The 2023 edition has been revised completely to take new haemophilia treatments into account. It is a great introductory resource about haemophilia that is very useful for...
Australian Bleeding Disorders Conference
Haemophilia Foundation Australia is convening the 2025 Australian Bleeding Disorders Conference in Brisbane on 16-18 October 2025.
Being rare
Adam, Bel and Tayla share their experiences of growing up with a very rare bleeding disorder and what they learned along the way.
Can you help with the PROBE study
HFA is still recruiting people to complete the PROBE Australia Study.
Do you have a bleeding disorder
The ISTH International Bleeding Assessment Tool (ISTH-BAT) is a standardized scoring system to evaluate if you may have a bleeding disorder.
Exercise and movement for persistent pain
Exercise and movement are an effective way to manage persistent pain for people with bleeding disorders.
From the President
It is a great start to 2025. HFA has hit the ground running, with new initiatives as well as World Haemophilia Day and the Conference coming up this year.
Gene and emerging therapies in haemophilia
Exciting advancements in gene therapy and other emerging treatments for haemophilia were presented at the Blood 2024 conference.
Rare Disease Day 2025
Rare Disease Day was celebrated on 28 February 2025 to raise awareness and generate change for people with rare diseases, including rare bleeding disorders.
Understanding your menstrual cycle with a bleeding disorder
Starting conversations about periods before menstruation begins can help to normalise and reduce the stigma and shame girls can feel about menstruating.
Women and girls advisory group
The group advising HFA Council on issues for women and girls affected by bleeding disorders had its first meeting in February 2025.
World Haemophilia Day 2025
World Haemophilia Day 2025 is a worldwide call to action to close the gaps in care for women and girls with bleeding disorders.
Haemophilia Treatment Preferences Survey
(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’ treatment goals? Results presented are based on a study conducted by Community and Patient Preference...
No 229 March 2025
In this issue we feature women and girls – World Haemophilia Day’s theme of women and girls bleed too, exciting news about the HFA women and girls advisory group, diagnosing a bleeding disorder and understanding...
Growing up with VWD
Cassie’s personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.
Navigating challenges at school
How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.
Travelling overseas with haemophilia
Claire describes international travel with her sons with severe haemophilia: treatments, packing, luggage and planning.