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WFH Summit: new therapies and approaches
WFH CCS topics included health literacy in shared decision-making, new therapies for VWD and women and girls with bleeding disorders.
Gene and emerging therapies in haemophilia
Exciting advancements in gene therapy and other emerging treatments for haemophilia were presented at the Blood 2024 conference.
Haemophilia Treatment Preferences Survey
(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’ treatment goals? Results presented are based on a study conducted by Community and Patient Preference...
New VWD fact sheet
Find answers to your FAQs about von Willebrand disease (VWD) in our new fact sheet – symptoms, types, inheritance, diagnosis and treatment.
Haemophilia gene therapy snapshot survey
HFA’s haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.
ISTH 2024 Congress: novel therapies
Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.
New haemophilia booklet
The new HFA Haemophilia booklet is now available. The 2023 edition has been revised completely to take new haemophilia treatments into account. It is a great introductory resource about haemophilia that is very useful for...
Behind the scenes of haemophilia care
Paediatric haemophilia nurses describe what they learned about transition from child to adult haemophilia care during a visit to an adult HTC.
Blessed in a different way
Simoni and Javonte caught up to talk about growing up with a bleeding disorder, treatment, playing sport and why it’s important to share your story.
From the President
HFA has had a positive and energising start to 2026, focusing on our strategic objectives and priority projects.
Growing older
Growing older may add extra challenges for people with bleeding disorders. Support services can be to maintain independence, safety and quality of life.
My platelets are like bricks without cement
Carly shares her tips for living well with Glanzmann thrombasthenia, a rare inherited platelet disorder.
New and emerging treatments for von Willebrand disease (VWD)
An overview of new and emerging VWD therapies currently being studied. Most are experimental but show promising directions for future care.
Rare Disease Day 2026
On Rare Disease Day we strive for equity in social opportunities, healthcare and access to diagnosis and therapies for people with rare bleeding disorders.
The National Blood Authority
Jo Cameron explains who the National Blood Authority is and what it does with product funding, horizon scanning and the ABDR.
Who's new at AHCDO
Jenny Morgan has joined AHCDO as the new Program Officer – Clinical Advisory.
Why test for haemophilia in women and girls?
Testing for haemophilia in women and girls is crucial as many are not yet diagnosed and registered with the national Bleeding Disorders Registry.
World Haemophilia Day 2026
World Haemophilia Day is celebrated on 17 April. The 2026 theme is ‘Diagnosis – first step to care’. Landmarks will light up red to raise awareness.
No 233 March 2026
Being diagnosed with a bleeding disorder is a critical first step in treatment and care. In this issue we explore this theme for World Haemophilia and Rare Disease Day, looking at testing for haemophilia in...