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New VWD fact sheet
Find answers to your FAQs about von Willebrand disease (VWD) in our new fact sheet – symptoms, types, inheritance, diagnosis and treatment.
New haemophilia booklet
The new HFA Haemophilia booklet is now available. The 2023 edition has been revised completely to take new haemophilia treatments into account. It is a great introductory resource about haemophilia that is very useful for...
Growing up with VWD
Cassie’s personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.
Navigating challenges at school
How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.
Travelling overseas with haemophilia
Claire describes international travel with her sons with severe haemophilia: treatments, packing, luggage and planning.
Endoscopies – what might I need to know?
Special considerations with endoscopy, gastroscopy or colonoscopy for people with haemophilia, VWD and other bleeding disorders.
World AIDS Day
In 2024 World AIDS Day asks us to be proactive in awareness and support for community members living with HIV, with the theme ‘It starts with me’.
Why stay in contact with your HTC?
How your Haemophilia Treatment Centre can support you over your lifetime and ensure your wellbeing and best outcomes from treatment and care.
Who’s new?
New staff at HFA and AHCDO! Alison Armstead at HFA – fundraising/event management; Dr Sally Campbell at AHCDO -Clinical Research Consultant.
Can you help with PROBE?
People without a bleeding disorder are also needed for the PROBE Australia Study to research the impact of haemophilia.
Bleeding Disorders Awareness Month
In October 2024 we came together to raise awareness about haemophilia, VWD and other rare bleeding disorders.
Bleeding Disorders Awareness Month in pictures
In October 2024 people around Australia wore red and shared red food to raise awareness about bleeding disorders.
From the President
As we wrap up 2024, HFA reflects on our achievements in new therapies, hep C advocacy and support during the year.
No 228 December 2024
Thanks to everyone who participated in Bleeding Disorders Awareness Month in October 2024. It was an amazing national celebration. We share a gallery of pictures of red events from around Australia. We also look at...
Haemophilia gene therapy snapshot survey
HFA’s haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.
From the President
Heading to the end of the year, we review our progress. Gene and emerging therapies are on the agenda, and Bleeding Disorders Awareness Month is coming up.
Haemophilia inheritance video
HFA’s short video for teenage males answers the question, will males with haemophilia pass it on to their children – and how are genes involved?
ISTH 2024 Congress: novel therapies
Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.
MyABDR and recording your treatment
With new haemophilia treatments, recording on MyABDR has some challenges. HTCs and users share their tips.
Parenting a teenager with a rare bleeding disorder
Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.