Home  >  Resources  >  National Haemophilia Journal  >  Find an article

Find an article

Filter by keyword

Filter by keyword

Set date range

Set date range

Filter by topic

Filter by topic
  • Treatment & care
  • Young people
  • Personal stories
  • Women & girls
  • Hepatitis C & HIV
  • Joints & muscles
  • Getting older
  • Mental wellbeing
  • Parents & families
  • Haemophilia
  • Rare bleeding disorders
  • Bleeding disorders
  • Von Willebrand disease
  • Inherited platelet function disorders
  • New treatments
  • Travel
  • Employment
  • Gene therapy
  • Inheritance
  • Pain
  • Telling others
 National Haemophilia Journal

New VWD fact sheet

VWD

Find answers to your FAQs about von Willebrand disease (VWD) in our new fact sheet – symptoms, types, inheritance, diagnosis and treatment.

 National Haemophilia Journal

New haemophilia booklet

haemophilia

The new HFA Haemophilia booklet is now available. The 2023 edition has been revised completely to take new haemophilia treatments into account.  It is a great introductory resource about haemophilia that is very useful for...

 National Haemophilia Journal

Growing up with VWD

girlsheavy menstrual bleedingperiodsVWDyoung women

Cassie’s personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.

 National Haemophilia Journal

Navigating challenges at school

haemophiliainherited platelet function disordersrare clotting factor deficienciesschoolVWD

How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.

 National Haemophilia Journal

Travelling overseas with haemophilia

haemophiliatravel

Claire describes international travel with her sons with severe haemophilia: treatments, packing, luggage and planning.

 National Haemophilia Journal

Endoscopies – what might I need to know?

colonoscopyendoscopygastroscopyhaemophiliainherited platelet function disordersrare clotting factor deficienciesVWD

Special considerations with endoscopy, gastroscopy or colonoscopy for people with haemophilia, VWD and other bleeding disorders.

 National Haemophilia Journal

World AIDS Day

living with HIVWorld AIDS Day

In 2024 World AIDS Day asks us to be proactive in awareness and support for community members living with HIV, with the theme ‘It starts with me’.

 National Haemophilia Journal

Why stay in contact with your HTC?

Haemophilia Treatment Centressupporttreatment

How your Haemophilia Treatment Centre can support you over your lifetime and ensure your wellbeing and best outcomes from treatment and care.

 National Haemophilia Journal

Who’s new?

AHCDOemploymenthaemophilia foundations

New staff at HFA and AHCDO! Alison Armstead at HFA – fundraising/event management; Dr Sally Campbell at AHCDO -Clinical Research Consultant.

 National Haemophilia Journal

Can you help with PROBE?

haemophiliaoutcomesquality of liferesearch studies

People without a bleeding disorder are also needed for the PROBE Australia Study to research the impact of haemophilia.

 National Haemophilia Journal

Bleeding Disorders Awareness Month

Bleeding Disorders Awareness Month

In October 2024 we came together to raise awareness about haemophilia, VWD and other rare bleeding disorders.

 National Haemophilia Journal

Bleeding Disorders Awareness Month in pictures

Bleeding Disorders Awareness Month

In October 2024 people around Australia wore red and shared red food to raise awareness about bleeding disorders.

 National Haemophilia Journal

From the President

Damon Courtenay Memorial Endowment Fund (DCMEF)gene therapyHepatitis CrepresentationSouth Australia

As we wrap up 2024, HFA reflects on our achievements in new therapies, hep C advocacy and support during the year.

 National Haemophilia Journal

No 228 December 2024

Thanks to everyone who participated in Bleeding Disorders Awareness Month in October 2024. It was an amazing national celebration. We share a gallery of pictures of red events from around Australia. We also look at...

 National Haemophilia Journal

Haemophilia gene therapy snapshot survey

gene therapyhaemophiliaoutcomestreatment

HFA’s haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.

 National Haemophilia Journal

From the President

Bleeding Disorders Awareness Monthgene therapyhaemophiliarepresentation

Heading to the end of the year, we review our progress. Gene and emerging therapies are on the agenda, and Bleeding Disorders Awareness Month is coming up.

 National Haemophilia Journal

Haemophilia inheritance video

haemophiliainheritancemalesYouth

HFA’s short video for teenage males answers the question, will males with haemophilia pass it on to their children – and how are genes involved?

 National Haemophilia Journal

ISTH 2024 Congress: novel therapies

emerging therapieshaemophiliatreatment

Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.

 National Haemophilia Journal

MyABDR and recording your treatment

MyABDRtreatment recording

With new haemophilia treatments, recording on MyABDR has some challenges. HTCs and users share their tips.

 National Haemophilia Journal

Parenting a teenager with a rare bleeding disorder

friendsgirlsGlanzmann thrombastheniaparentsschool

Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.

Join the HFA community

Sign up for the latest news, events and our free National Haemophilia magazine

Skip to content