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WFH Summit: new therapies and approaches
WFH CCS topics included health literacy in shared decision-making, new therapies for VWD and women and girls with bleeding disorders.
Gene and emerging therapies in haemophilia
Exciting advancements in gene therapy and other emerging treatments for haemophilia were presented at the Blood 2024 conference.
Haemophilia Treatment Preferences Survey
(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’ treatment goals? Results presented are based on a study conducted by Community and Patient Preference...
New VWD fact sheet
Find answers to your FAQs about von Willebrand disease (VWD) in our new fact sheet – symptoms, types, inheritance, diagnosis and treatment.
Haemophilia gene therapy snapshot survey
HFA’s haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.
ISTH 2024 Congress: novel therapies
Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.
New haemophilia booklet
The new HFA Haemophilia booklet is now available. The 2023 edition has been revised completely to take new haemophilia treatments into account. It is a great introductory resource about haemophilia that is very useful for...
Australian youth at Congress
Nine Australian youth delegates share their reflections on the WFH 2026 World Congress and their interviews with other Congress delegates.
Bleeding Disorders Awareness Month 2026
Bleeding Disorders Awareness Month is coming up in October 2026. Find out how you can take part in activities to raise awareness.
Calendar
What events are coming up?
Congress – improving diagnosis and care for WGBD
Joanna McCosker reports on the Congress workshop to improve diagnosis and care for women and girls with bleeding disorders.
Congress – Enhancing nursing care
Rosamma Varghese reports on nursing sessions about inhibitor management and musculoskeletal bleeds at Congress.
Congress – Global National Member Organisation Training
Claudio Damiani speaks about what he learned about capacity building at the WFH Global National Member Organisation Training.
Congress – Musculoskeletal health in children and young people
Hayley Coulson reports on Congress about physical activity, musculoskeletal assessment and strength training for young people with bleeding disorders.
Congress – Musculoskeletal highlights
Abi Polus reports on the WFH 2026 Congress, highlighting orthopaedic minimally invasive procedures, the elbow, the pelvic floor and pain.
Congress – Musculoskeletal management
Cameron Cramey summarises some emerging research in musculoskeletal physiotherapy presented at the WFH 2026 World Congress.
Congress – Nurse-led care
Shirley Wong reports on sessions about nurse-led clinics and multidisciplinary joint management at the WFH 2026 World Congress.
Congress – Resilience and recovery
Monique Manzanera reports on a Congress session on resilience and recovery with practical coping strategies for mental wellbeing.
Congress – von Willebrand disease (VWD)
Suzanne O’Callaghan reports on a Congress session on VWD diagnosis and treatment, including emerging therapies.