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WFH Summit: new therapies and approaches
WFH CCS topics included health literacy in shared decision-making, new therapies for VWD and women and girls with bleeding disorders.
Gene and emerging therapies in haemophilia
Exciting advancements in gene therapy and other emerging treatments for haemophilia were presented at the Blood 2024 conference.
Haemophilia Treatment Preferences Survey
(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’ treatment goals? Results presented are based on a study conducted by Community and Patient Preference...
New VWD fact sheet
Find answers to your FAQs about von Willebrand disease (VWD) in our new fact sheet – symptoms, types, inheritance, diagnosis and treatment.
Haemophilia gene therapy snapshot survey
HFA’s haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.
ISTH 2024 Congress: novel therapies
Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.
New haemophilia booklet
The new HFA Haemophilia booklet is now available. The 2023 edition has been revised completely to take new haemophilia treatments into account. It is a great introductory resource about haemophilia that is very useful for...
Bleeding Disorders Awareness Month
Bleeding Disorders Awareness Month is coming up in October 2026. Find out how you can be involved and order your promotional items.
Congress: stories of challenge and resilience
Lenny shares his experiences of WFH World Congress – presenting on his own challenges and hearing the resilience of other speakers.
Exercise as medicine
Exercise is an important tool to help people with bleeding disorders manage the physical challenges that come with ageing.
From the President
Alan Dursun, HFA President, gives an update on current activities – the BBV Inquiry, the Women’s Workshop, a farewell to well-loved nurses, Twinning with Cambodia.
Haemophilia guide launch
The 2026 version of Haemophilia: a guide for parents of a newly diagnosed child was launched in August 2026.
HFA now has a podcast
Bleeding Disorders & Beyond is HFA’ss new podcast, with interviews and personal stories about new and emerging treatments.
ISTH 2026 – what’s on the horizon for bleeding disorders?
The ISTH 2026 world congress highlighted the continuing development of new therapies for bleeding disorders.
ISTH 2026 Congress highlights
ISTH World Congress 2026 had strong messages – that people with haemophilia are living longer and women and girls bleed too.
Lincoln’s guide to raising awareness
Lincoln gives his tips on raising awareness about haemophilia at school.
MyABDR tip
If you are not using MyABDR regularly, try a monthly calendar reminder to login and check your treatment, bleeds and stock are up-to-date.
New Senate BBV Inquiry
What is the 2026 Senate Inquiry into infected blood products and how can you be involved?