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Abstracts and Presentations

Conference Abstract book

Friday 21 October 2011

Plenary 1

How a happier body can lead to a happier mind – Anna Louise Bouvier – [PDF,  1.4MB]

Concurrent 1 – am
Keeping the body in tune – children

Chair: Wendy Poulsen
Managing diet – dealing with fussy eaters – Dr Jacqui Dalby-Payne – [PDF, 432KB]
Risk of bleeds associated with physical activity in children with haemophilia – Dr Carolyn Broderick
Personal Experience – Chris Gordon

Concurrent 2 – am
Staying on your feet – a session for adults of all ages

Chair: Dr Huyen Tran
Saving the Ankle Joint – Dr Sanjeev Gupta
Haemophiliac joints in children: can we preserve them from damage?
A/Prof Prudence Manners – [PDF, 2.8MB]
Dr Anne Powell – [PDF, 215KB] 
Staying on your feet – a session for adults of all ages – Emma Paterson- [PDF, 72KB]

Concurrent 3 – am
Von Willebrand Disorder

Chair: Dr Susan Russell
A personal story of a family affected by VWD – Manal Awad
VWD – clinical update on treatment and care – Dr Mandy Davis
Diagnosis and classification of VWD –Dr Emmanuel Favaloro –  [PDF, 329KB] 

Concurrent 1 – pm
Keeping the mind and body in tune – adults

Chair: Andrew Atkins
Obesity/weight management: clinical issues – Dr Anne Powell
Personal experiences: Andrew Selvaggi and Zev Fishman will share their inspiring stories of overcoming some of the complications of haemophilia
Creating flourishing lives: putting positive psychology into practice – Nicola Gates – [PDF 357KB]

Concurrent 2 – pm
Women’s health and reproduction

Chair: Belinda Burnett
IVF and embryo diagnosis – Dr Kristi Jones – [PDF, 766KB]  
Managing menorrhagia – Dr Claire McLintock – [PDF,  734KB]
HFNZ Women’s Program – Lynne Campbell – [PDF, 351KB]

Concurrent 3 – pm
Transitions: becoming an adult

Chair: Maureen Spilsbury
Transitioning in Queensland: From Teddy Bears to Apprenticeships! – Maureen Spilsbury & Dr Desdemona Chong – [PDF, 469KB]
WA Transition program – Presented by Haemophilia Counsellor – Sharon Hawkins and William Oversby – [PDF, 531KB]
A panel of young people and professionals will discuss their experiences of youth transition

Plenary 2

Chair: Zev Fishman
Haemophilia and Ageing – Dr Mike Makris
Followed by multidisciplinary panel: Leonie Mudge (Social Worker), Ian dYoung (Physiotherapist), Stephen Mathews (Nurse) )

Saturday 22 October 2011

Plenary 3
Treatment challenges

Chair: Dr Scott Dunkley
Safety of current products used to treat inherited bleeding disorders – Dr Mike Makris
Current and emerging challenges, risk factors for inhibitor development – Dr Julie Curtin – [PDF, 822KB]
Update from the AHCDO Tolerisation Advisory Committee – Dr Chris Barnes – [PDF, 165KB]
Inhibitors in mild haemophilia – Dr Simon McRae 
A personal experience of tolerisation – Hamish Robinson

Concurrent 1 – am
Men’s Business

Chair: Sharon Hawkins
Facilitator: Greg Millan
What’s normal? – across the lifespan – Greg Millan – [PDF, 381KB]
Enjoying your sex life: Issues and solutions for men with physical impairment – Dr Tinashe Dune – [PDF, 429KB]
Panel – Q&A
Haemophilia physiotherapist – Cameron Cramey – [PDF,131KB]
Haemophilia nurse – Clare Waite – [PDF, 82KB] 
Haemophilia Counsellor – Sharon Hawkins – [PDF, 103KB]
BBV’s , and body image – Dr Roger Garsia – [PDF, 210KB]

Concurrent 2 – am
The challenges of prophylaxis

Chair: Ian d’Young
Clinical update on prophylaxis – Dr Alessandro Gringeri
Delivery of Prophylactic Factor to Children with Severe Haemophilia: the challenge of venous access – Dr Susan Russell & Robyn Shoemark – [PDF, 676KB]
Joint health for children and adolescents: Prophylaxis is not the only answer – Ian d’Young 

Concurrent 3 – am
The rarer bleeding disorders

Chair: Grainne Dunn
A personal story by a mother of a child with severe factor XI deficiency – Nadine Penn
Nursing perspectives – 3 nurses will present snapshots of their experiences of looking after patients with rare bleeding disorders and the nursing issues that arise:

Factor X deficiency – Dr James Price – [PDF, 36KB]
Platelet function disorders – Dr Tim Brighton – [PDF, 686KB]

Concurrent 1 – pm
Living with hepatitis C and/or HIV co-infection

Chair: Megan Walsh
From a patient’s perspective – Luke Ahern
Medical update on HIV co-infection including reproduction for HIV discordant couples – Dr Roger Garsia – [PDF, 62KB]
Update on hepatitis C and treatment – A/Prof Simone Strasser
Managing symptoms and liver health – Anne Glass – [PDF, 303KB]

Concurrent 2 – pm
Caring for parents and carers

Chair: Dr Desdemona Chong
Taming the Stress Dragon – Dr Desdemona Chong – [PDF, 469KB]
Empowering Parents!
PEP in Australia – Anne Jackson – [PDF, 250KB]
Re-PEP in New Zealand – an opportunity to review, re-visit, reflect and refresh – Colleen McKay – [PDF, 170KB] 
The benefits from a Mother’s perspective – Lynley Scott
The benefits from a Father’s perspective – Richard Scott
Caring for Carers across the spectrum – Elena Katrakis – [PDF, 176KB]

Concurrent 3 – pm
Communication and Social media

Chair: Jonathan Spencer
Social networking – community perspectives and issues to consider for community organisations – Suzanne O’Callaghan – [PDF, 278KB] 
Can you Care too Much? Maintaining the Delicate Balance of Professional Boundaries in a New Age – Lyn Biviano & Natasha Samy – [PDF, 64KB]
Privacy and reputation management in the digital space – Melissa Sevil

Plenary 4
Treatment and care – now and the future

Chair: Geoff Simon
What are some of the issues? – Geoff Simon
Expectations from a community perspective – Deon York – [PDF, 181KB]
Optimising supply and demand for clotting factors – Stephanie Gunn – [PDF, 535KB] 
The future of haemophilia care – a personal view – Dr Mike Makris

Date last reviewed: 17 November 2011

Important Note: This information was developed by Haemophilia Foundation Australia for education and information purposes only and does not replace advice from a treating health professional. Always see your health care provider for assessment and advice about your individual health before taking action or relying on published information. This information may be printed or photocopied for educational purposes.

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