Friday 21 October 2011
Plenary 1
How a happier body can lead to a happier mind – Anna Louise Bouvier – [PDF, 1.4MB]
Concurrent 1 – am
Keeping the body in tune – children
Chair: Wendy Poulsen
Managing diet – dealing with fussy eaters – Dr Jacqui Dalby-Payne – [PDF, 432KB]
Risk of bleeds associated with physical activity in children with haemophilia – Dr Carolyn Broderick
Personal Experience – Chris Gordon
Concurrent 2 – am
Staying on your feet – a session for adults of all ages
Chair: Dr Huyen Tran
Saving the Ankle Joint – Dr Sanjeev Gupta
Haemophiliac joints in children: can we preserve them from damage?
A/Prof Prudence Manners – [PDF, 2.8MB]
Dr Anne Powell – [PDF, 215KB]
Staying on your feet – a session for adults of all ages – Emma Paterson- [PDF, 72KB]
Concurrent 3 – am
Von Willebrand Disorder
Chair: Dr Susan Russell
A personal story of a family affected by VWD – Manal Awad
VWD – clinical update on treatment and care – Dr Mandy Davis
Diagnosis and classification of VWD –Dr Emmanuel Favaloro – [PDF, 329KB]
Concurrent 1 – pm
Keeping the mind and body in tune – adults
Chair: Andrew Atkins
Obesity/weight management: clinical issues – Dr Anne Powell
Personal experiences: Andrew Selvaggi and Zev Fishman will share their inspiring stories of overcoming some of the complications of haemophilia
Creating flourishing lives: putting positive psychology into practice – Nicola Gates – [PDF 357KB]
Concurrent 2 – pm
Women’s health and reproduction
Chair: Belinda Burnett
IVF and embryo diagnosis – Dr Kristi Jones – [PDF, 766KB]
Managing menorrhagia – Dr Claire McLintock – [PDF, 734KB]
HFNZ Women’s Program – Lynne Campbell – [PDF, 351KB]
Concurrent 3 – pm
Transitions: becoming an adult
Chair: Maureen Spilsbury
Transitioning in Queensland: From Teddy Bears to Apprenticeships! – Maureen Spilsbury & Dr Desdemona Chong – [PDF, 469KB]
WA Transition program – Presented by Haemophilia Counsellor – Sharon Hawkins and William Oversby – [PDF, 531KB]
A panel of young people and professionals will discuss their experiences of youth transition
Plenary 2
Ageing
Chair: Zev Fishman
Haemophilia and Ageing – Dr Mike Makris
Followed by multidisciplinary panel: Leonie Mudge (Social Worker), Ian dYoung (Physiotherapist), Stephen Mathews (Nurse) )
Saturday 22 October 2011
Plenary 3
Treatment challenges
Chair: Dr Scott Dunkley
Safety of current products used to treat inherited bleeding disorders – Dr Mike Makris
Current and emerging challenges, risk factors for inhibitor development – Dr Julie Curtin – [PDF, 822KB]
Update from the AHCDO Tolerisation Advisory Committee – Dr Chris Barnes – [PDF, 165KB]
Inhibitors in mild haemophilia – Dr Simon McRae
A personal experience of tolerisation – Hamish Robinson
Concurrent 1 – am
Men’s Business
Chair: Sharon Hawkins
Facilitator: Greg Millan
What’s normal? – across the lifespan – Greg Millan – [PDF, 381KB]
Enjoying your sex life: Issues and solutions for men with physical impairment – Dr Tinashe Dune – [PDF, 429KB]
Panel – Q&A
Haemophilia physiotherapist – Cameron Cramey – [PDF,131KB]
Haemophilia nurse – Clare Waite – [PDF, 82KB]
Haemophilia Counsellor – Sharon Hawkins – [PDF, 103KB]
BBV’s , and body image – Dr Roger Garsia – [PDF, 210KB]
Concurrent 2 – am
The challenges of prophylaxis
Chair: Ian d’Young
Clinical update on prophylaxis – Dr Alessandro Gringeri
Delivery of Prophylactic Factor to Children with Severe Haemophilia: the challenge of venous access – Dr Susan Russell & Robyn Shoemark – [PDF, 676KB]
Joint health for children and adolescents: Prophylaxis is not the only answer – Ian d’Young
Concurrent 3 – am
The rarer bleeding disorders
Chair: Grainne Dunn
A personal story by a mother of a child with severe factor XI deficiency – Nadine Penn
Nursing perspectives – 3 nurses will present snapshots of their experiences of looking after patients with rare bleeding disorders and the nursing issues that arise:
- Acquired haemophilia – Andrew Atkins
- Afibrinogenaemia – Olivia Hollingdrake
- Glanzmann’s- Penny McCarthy
Factor X deficiency – Dr James Price – [PDF, 36KB]
Platelet function disorders – Dr Tim Brighton – [PDF, 686KB]
Concurrent 1 – pm
Living with hepatitis C and/or HIV co-infection
Chair: Megan Walsh
From a patient’s perspective – Luke Ahern
Medical update on HIV co-infection including reproduction for HIV discordant couples – Dr Roger Garsia – [PDF, 62KB]
Update on hepatitis C and treatment – A/Prof Simone Strasser
Managing symptoms and liver health – Anne Glass – [PDF, 303KB]
Concurrent 2 – pm
Caring for parents and carers
Chair: Dr Desdemona Chong
Taming the Stress Dragon – Dr Desdemona Chong – [PDF, 469KB]
Empowering Parents!
PEP in Australia – Anne Jackson – [PDF, 250KB]
Re-PEP in New Zealand – an opportunity to review, re-visit, reflect and refresh – Colleen McKay – [PDF, 170KB]
The benefits from a Mother’s perspective – Lynley Scott
The benefits from a Father’s perspective – Richard Scott
Caring for Carers across the spectrum – Elena Katrakis – [PDF, 176KB]
Concurrent 3 – pm
Communication and Social media
Chair: Jonathan Spencer
Social networking – community perspectives and issues to consider for community organisations – Suzanne O’Callaghan – [PDF, 278KB]
Can you Care too Much? Maintaining the Delicate Balance of Professional Boundaries in a New Age – Lyn Biviano & Natasha Samy – [PDF, 64KB]
Privacy and reputation management in the digital space – Melissa Sevil
Plenary 4
Treatment and care – now and the future
Chair: Geoff Simon
What are some of the issues? – Geoff Simon
Expectations from a community perspective – Deon York – [PDF, 181KB]
Optimising supply and demand for clotting factors – Stephanie Gunn – [PDF, 535KB]
The future of haemophilia care – a personal view – Dr Mike Makris