FRIDAY 25 AUGUST 2023
| 0850-1015 | Plenary 1 Treatment landscape into the future |
| Chair: David Fagan | |
| From then to now – Gavin Finkelstein What is precision or personalized medicine? New and emerging treatments for all bleeding disorders – Dr Glenn Pierce Australian experience and challenges with new and emerging haemophilia therapies – Dr Liane Khoo Access to new therapies – policy and regulation – Jo Cameron Hopes for the future: reflections from a parent – Clare |
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| 1045-1215 | Plenary 2 Gene Therapy |
| Chair: Prof Huyen Tran | |
| Overview – Dr Glenn Pierce Psychological overview – Jane Portnoy Overview into AHCDO Gene therapy roadmap – Prof Huyen Tran Q&A |
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| 1330-1500 | Concurrent 1
The impact of new treatments on children and families |
| Chair: Anne Jackson | |
| The impact of new treatments on children & families – Anne Jackson Impact on practice in the paediatric setting – A Paediatric Nurse’s View – Janine Furmedge Physical activity in children – Nicola Hamilton Young adult and his mother's perspective: Catherine and Lachlan Q&A |
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| 1330-1500 | Concurrent 2
Rare Bleeding Disorders |
| Chair: Dr Jane Mason | |
| Personal Experience – Chauntelle, FXIII Rare Bleeding Disorders – Dr Sally Campbell Personal experience – Jenny, acquired haemophilia A Acquired haemophilia – Dr Jane Mason Hereditary Hemorrhagic Telangiectasia – Alex Klever Q&A |
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| 1330-1500 | Concurrent 3
Making Career Choices |
| Chair: Penny McCarthy | |
| Career choices over a lifetime. Do they change with new treatments? – Penny McCarthy Personal Stories How to make career choices – Jon Hazelton Employment: discrimination, disclosure and the law – Mark Waters Personal story – Dale Panel Discussion and Q&A:
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| 1530-1700 | Plenary 3 Women and girls with bleeding disorders |
| Chair: Dr Meredith Wiggins | |
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Personal perspectives on the challenges and issues of living with a bleeding disorder
Q&A |
SATURDAY 26 AUGUST 2023
| 0845-1015 | Plenary 4 Managing Mild Haemophilia |
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| Chair: Dr Heather Tapp | ||
| Personal perspective from a young adult and his dad – Louis and Tom Diagnosis and treatment – Dr Heather Tapp Mild haemophilia in adults: medical issues – Dr Stephanie P’ng Nursing management, including surgery in mild haemophilia – Alex Klever Physical activities and sport across the lifespan – Abi Polus |
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| 1045-1215 | Concurrent 4
Inheritance, genetics and family planning |
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| Chair: Dr Chris Barnes | ||
| Personal story Inheritance and genetics, reproduction and family planning – Geneticist and Genetic Counsellor: A/Prof Kristi Jones and Lucy Kevin Q&A |
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| 1045-1215 | Concurrent 5
Is it a bleed? MSK recovery |
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| Chair: Jo Newsom | ||
| Case Study Conditions that can mimic a bleed – Dr Rob Russo Joint bleed recovery – how long does it really take? – Ali Morris Muscle bleed recovery – Jarrad King Q/A panel |
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| 1045-1215 | Concurrent 6
Getting older |
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| Chair: Suzanne O’Callaghan | ||
| Personal story – Mike Medical issues – Dr Liane Khoo Hep C and liver health – Dr David Iser Social connection – Marcia Fearn Panel discussion and Q&A:
Psychosocial worker: Kathryn Body |
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| 1330-1500 | Concurrent 7
Pregnancy, childbirth and newborns |
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| Chair: Dr Jane Mason | ||
| Nursing perspective – pregnancy and delivery management – Robyn Shoemark Delivery and birth – Dr Iniyaval Thevathasan Best practice management of Previously Untreated Patients – Dr Simon Brown Personal Story – Rebecca Q&A |
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| 1330-1500 | Concurrent 8
VWD |
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| Chair: Dr Chee Wee Tan | ||
| Personal story – Adam Personal story – Susie VWD diagnosis – Dr Geoffrey Kershaw VWD clinical management – Dr Nalini Pati Q&A |
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| 1330-1500 | Concurrent 9
Pain |
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| Chair: Jonathan Spencer | ||
| Pain management in the future – Dr Carolyn Arnold Pain and physiotherapy – Cat Pollard Strategies to manage procedural and acute pain in children – Michelle Perrin Q&A |
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1530-1700 |
Plenary 5 Working towards good health |
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Beyond resilience comes adaptability: thriving in a changing world – Dr Charlotte Keating Panel – What are the challenges we are facing, moving forward and how to keep connected
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