You may have noticed personal stories from women with bleeding disorders recently in National Haemophilia. Missed them? The stories are also online on the HFA web site.
This is part of the work of the HFA Women’s Project. Thanks to the women who have agreed to be part of the project and share their experiences or contribute to the new HFA education resources!
The education resources will include two booklets for women, one on carrying the gene for haemophilia and the other on living with a bleeding disorder. They are well underway and will be available in print and online.
We had a great response from young women and teenage girls with bleeding disorders and parents – thanks to all who have completed the online survey! You can see the results in this issue of National Haemophilia.
Their answers and ideas will be used to develop separate information resources specifically targeted at young women and teenage girls in the 13-25 age group.
Contact Suzanne O'Callaghan
E: socallaghan@haemophilia.org.au
T: 1800 807 173 (Mon-Fri)
Contact Hannah Opeskin
E: hopeskin@haemophilia.org.au
T: 1800 807 173 (Tue, Wed, Fri)
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