No 190 June 2015

6.9 million people worldwide have a bleeding disorder 75 per cent of them do not know it BUILDING A FAMILY…

EARLYBIRD REGISTRATIONS CLOSE 31 JULY The 17th Australian & New Zealand Conference on Haemophilia and Related Bleeding Disorders will be…

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia WORLD CONGRESS It is hard to believe that the 2014 World…

NEW TREATMENTS Access to the new generation direct acting antiviral (DAA) hepatitis C drugs has been at the forefront of…

World Hepatitis Day will be marked globally on 28 July 2015. This year the theme is “It’s time for action”….

After 12 or more years in High Street, Glen Iris, Haemophilia Foundation Australia (HFA) is moving to a “new” rented…

The author of this story is an Australian bleeding disorders community member My personal story I have lived my whole…

Haemophilia is caused by an alteration in the gene making factor VIII (8) or IX (9) Men and women can…

DESDEMONA CHONG AND MAUREEN SPILSBURY Desdemona Chong is the Advanced Clinical Psychologist and Maureen Spilsbury is the Advanced Social Worker…

HANNAH OPESKIN Hannah Opeskin is Health Promotion Officer, Haemophilia Foundation Australia HFA is currently developing new information resources for young…

WOMEN’S PROJECT You may have noticed personal stories from women with bleeding disorders recently in National Haemophilia. Missed them? The…

COMMUNITY GET TOGETHER Adelaide, South Australia Friday 3 July 2015 We hope you will be able to attend an informal…

ANDREW ATKINS ​Andrew Atkins is Haemophilia Clinical Practice Consultant, Royal Adelaide Hospital The availability of clotting factor in Australia has…

From the HFA and National Blood Authority MyABDR Team   WHAT’S NEW? The latest release of MyABDR in January 2015…

NEIL FROM SA ​Neil is a community member from South Australia I welcomed the advent of MYABDR with some excitement…

ANN WILSON Ann Wilson is the ABDR Project Officer ABDR RESEARCH Although bleeding disorders and their treatment have been widely…

Right: Hamish and Jacob at Red Cake Day “I’ve rarely seen someone with haemophilia who was older and had more…

Red Cake Day Haemophilia Awareness Week 11-17 October 2015 Haemophilia Awareness Week is an opportunity for individuals and families as…

HANNAH OPESKIN Hannah Opeskin is Health Promotion Officer, Haemophilia Foundation Australia FACTORED IN YOUTH MODERATORS Since the moderation training in…

Answer the survey to be in the draw to win great prizes! HFA needs your feedback on our programs and…