Suzanne O'Callaghan is Policy Research and Education Manager, Haemophilia Foundation Australia
With so many new clotting factor products now coming on the market, you may have noticed that market research companies are actively looking for patients and parents/carers to interview or survey about their bleeding disorder or their treatment. But is it a good idea to take part?
Taking part in market research studies can be valuable for you and for others. In Australia research has a big influence on decisions about health services, treatment and care. If you participate in research, you can have your say on treatments, how they are packaged or presented, and their patient support programs, when you or others might be using them in the future.
But before you take part in a market research study, it is important to know more about its benefits and risks for you and whether it will have any impact on your health or privacy. Also, bear in mind that the laws and standards for relationships between pharmaceutical companies and community members are quite strict in Australia and different to other countries. For example, in Australia it is not permitted for prescription products to be promoted to the public, but this is quite acceptable in the U.S. This means that market research questions in Australia must be careful not to promote a particular product.
HFA regularly reviews market research studies before we promote them on the HFA web site. We have a list of questions to check they are meeting Australian standards and ask to look at their interview or survey questions. Many Australian market researchers belong to professional associations in Australia and follow their codes of practice and also follow the Medicines Australia Code of Conduct, so for some this is just a formality.
If you are interested in taking part in a market research study:
And if you have any queries about a research study, feel free to contact Suzanne O'Callaghan at HFA – email@example.com or T: 1800 807 173.
Sign up for the latest news, events and our free National Haemophilia magazine