World Hepatitis Day is marked internationally on 28 July.
This year we celebrated World Hepatitis Day with the stories of people with haemophilia and von Willebrand disorder who have been cured of their hep C.
In 2017 the global community has come together in support of the World Health Organisation’s commitment to eliminate viral hepatitis by 2030.
Imagine a future without hepatitis C.
Can we achieve this in the Australian bleeding disorders community?
The new direct acting antiviral (DAA) hepatitis C treatments are truly revolutionary. In Australia they are available on the PBS (Pharmaceutical Benefits Schedule), which means they only cost as much as any prescription medication. Hepatitis and haemophilia specialists are encouraging everyone with hepatitis C to come forward for treatment.
We are pleased to hear from Haemophilia Treatment Centres that most people with bleeding disorders have now been treated and cured of their hep C.
“I was handed the printout of results. The three words I knew would be there, were there: VIRUS NOT DETECTED. I was cured!!!!”
“Having had the new treatment and being cured has had a big impact on my quality of life. I have noticed over the last few months that I have a lot more energy. I used to go to work and then go home and feel really tired, now I get home and tinker about in the shed or whatever for a couple of hours if I feel like it.”
“I feel a lot better knowing I don’t have hepatitis C anymore. I’m going to be around a bit longer!”
What is it like to have the new treatment and be cured?
Paul and Len tell their stories in our new video – Hep C – I am cured! – https://tinyurl.com/hepc-cure
You can read their full stories at http://tinyurl.com/hepc-stories
“If you don’t know if you have hep C, get tested. It was just a fluke thing that I found out. But if I had known earlier that I had hep C, I probably wouldn’t have cirrhosis of the liver because I could have had it treated back years ago.”
HFA is keen to make sure that every Australian with a bleeding disorder and hep C has the opportunity to have treatment as soon as possible. However, we are aware that some people experience barriers that stop them from accessing treatment.
“The new treatment was nothing like the interferon treatments. I had one tablet a day every morning for 24 weeks.”
“The side effects? Nil.”
HFA is a Partner in the national World Hepatitis Day Campaign and works with Hepatitis Australia and State and Territory Foundations on key messages. Thanks to Hepatitis Australia for permission to adapt the 2014 World Hepatitis Day poster and to the HFA World Hepatitis Day Working Group for developing the campaign for the bleeding disorders community.
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