Everyone was agreed that there needed to be more information about getting older with a bleeding disorder, but where would you find it? A centralised location was obviously important and a key outcome from the project has been to establish a Getting Older Information Hub on the HFA website.
Interestingly, more than 85% of people who completed the Getting Older Community Survey said they used a computer daily and most used it to access information online. Printed education materials were still important to many and HFA will continue to provide some information in print as well as online.
Over the last 6 months the Getting Older Focus Group – a group of older bleeding disorder community members – have been working with HFA on the concept and design for the Info Hub. They worked from the consultation findings and their own experiences to decide the topics and sections include:
The Hub is available now and will continue to grow as more information is developed or sourced.
We would be interested to hear your feedback and ideas for more topics. You can find the Getting Older Info Hub on the HFA website – www.haemophilia.org.au/getting-older
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