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Items tagged 'treatment'

  • National Haemophilia Journal

Von Willebrand disease

  • Suzanne O'Callaghan -
  • 11 December 2023

SUZANNE O’CALLAGHAN Suzanne O’Callaghan is HFA Policy Research and Education Manager VWDChair ~ Dr Chee Wee TanPersonal story ~Adam Personal story…

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  • National Haemophilia Journal

Hopes for the future

  • Claire -
  • 11 December 2023
Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.
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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 26 June 2023

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia  As I write my update for National Haemophilia, I can’t help but think about…

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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 20 March 2023

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia  I focused on new therapies, starting school and the national conference in National Haemophilia…

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  • National Haemophilia Journal

Haemophilia treatment survey

  • Suzanne O'Callaghan -
  • 20 March 2023

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager What information does our community want about new haemophilia…

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  • National Haemophilia Journal

AHCDO update

  • Andrea Johannessen -
  • 12 December 2022

ANDREA JOHANNESSEN Dr Andrea Johannessen is AHCDO Executive Officer GENE THERAPY ROADMAP The Australian Haemophilia Centre Directors' Organisation (AHCDO) has…

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  • National Haemophilia Journal

From the President

  • Gavin Finkelstein -
  • 12 December 2022

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia   New therapies It is exciting to see more new therapies for bleeding disorders…

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  • National Haemophilia Journal

New haemophilia therapies

  • 12 December 2022

It is an exciting time with more new haemophilia treatments likely to become available in Australia, but there have been…

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  • National Haemophilia Journal

Poppa Erl and Roman share a special bond

  • Naomi -
  • 12 December 2022

Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much….

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  • National Haemophilia Journal

VWD down the generations

  • Fiona -
  • 12 December 2022

Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years…

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