Items tagged 'treatment'

SUZANNE O’CALLAGHAN Suzanne O’Callaghan is HFA Policy Research and Education Manager VWDChair ~ Dr Chee Wee TanPersonal story ~Adam Personal story…

Reflections from a parent Claire shared her personal story as a parent of young boys with haemophilia at the 21st…

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia  As I write my update for National Haemophilia, I can’t help but think about…

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia  I focused on new therapies, starting school and the national conference in National Haemophilia…

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is HFA Policy Research and Education Manager What information does our community want about new haemophilia…

It is an exciting time with more new haemophilia treatments likely to become available in Australia, but there have been…

Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much….

Fiona is in her early 50s and found out she had von Willebrand disease (VWD) when she was 6 years…

Willem spoke to HFA about working, exercising and being out and about in these days with new treatments.  My name’s…

ANDREA JOHANNESSEN Dr Andrea Johannessen is AHCDO Executive Officer GENE THERAPY ROADMAP The Australian Haemophilia Centre Directors' Organisation (AHCDO) has…

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