We are very pleased to announce that the new HFA folder Haemophilia – a guide for parents of a newly diagnosed child is now available.
The folder was launched on Thursday 26 October 2017 at the Kidz Factor Zone, The Children's Hospital at Westmead, Sydney. Dr Julie Curtin, the Haemophilia Treatment Centre Director, was one of the expert reviewers of the folder and presented the folder to a group of parents and health professionals at the launch.
The Guide explains haemophilia and how it is managed in plain language for parents who are new to haemophilia, with diagrams, and personal stories, tips and photos from other Australian parents. It includes quick reference cards – an emergency checklist for when a parent suspects a bleed and information on how to recognise a bleeding episode in a small child.
The folder will be distributed to parents and caregivers through Haemophilia Treatment Centres and is also available for downloading from the HFA website – www.haemophilia.org.au/newly-diagnosed.
We would like to thank the HFA parent and health professional review groups for generously giving their expertise and creative input to the development of the folder, and we would also like to acknowledge to the bleeding disorder community members who contributed personal stories, quotes and photos.