This letter is a thank you to everyone who has donated to HFA over the past year. Thank you for your generosity and commitment. Your support has been instrumental in improving the lives of people with bleeding disorders, their families and carers.
With your support, we’ve been able to accomplish so much in 2024-2025.
Some of the highlights include:
Updated logo and a new tagline
A major highlight has been a new and inclusive logo adding “For all bleeding disorders”. It was important for us to demonstrate that we recognise – and represent – people with all bleeding disorders.
Haemophilia inheritance in males video
In July we launched the Haemophilia inheritance in males video. The video explores how haemophilia is inherited and why males with haemophilia will pass the gene change on to their daughters, but not their sons. This short introductory video is an ideal resource for teenage males with haemophilia. Learn more.
Social media
We continue to be active on social media, primarily Facebook and Instagram, and over 2024-2025 we have increased engagement in our community by 3% with nearly 6,000 total followers.
HaemPref survey
In September, HFA commissioned the highly respected Community and Patient Preference Research (CaPPRe) to conduct the HaemPref (Haemophilia Treatment Preferences) Survey. This survey has helped HFA understand what people with haemophilia value from treatment and the types of treatment they prefer, particularly when new and innovative treatments are in the pipeline. The research will help represent and support those living with haemophilia, their families and carers and to advocate for better treatment and care. This was funded by the Haemophilia Foundation Research Fund. View a summary of the results.
Awareness Activities
Bleeding Disorders Awareness Month – October 2024
Each year in October is Bleeding Disorders Awareness Month. This is an opportunity for individuals and families, as well as HFA and local Foundations, to take part in a campaign and raise awareness about haemophilia, von Willebrand disease and other bleeding disorders around Australia. Across the country, there were hosted walks, ‘red’ morning teas, a trivia night, bake sales, ‘wear red’ day at schools, workplaces and treatment centres, and a Bunnings sausage sizzle.
World Haemophilia Day – 17 April 2025
We reached almost 30,000 across social media and had over 100 landmarks across Australia light up red for World Haemophilia Day with the theme “Women & Girls Bleed Too”.
VWD fact sheet
In November, HFA were pleased to launch our new von Willebrand disease (VWD) fact sheet. The new fact sheet has answers to a range of FAQs with the very latest information, including what is VWD? What are the symptoms and types? How is it diagnosed and treated?
This will be vital for those living with VWD to share with their families and keep on hand for new doctors, schools or other situations to provide a quick explanation. Read the fact sheet.
Gene and Emerging Therapies Hub
To keep our community informed, we recently launched the Gene & Emerging Therapies Hub on the HFA website. Recognising the treatment landscape for bleeding disorders is changing, HFA were able to secure corporate sponsor funding to set up our gene and emerging therapies hub on our website.
The GETs Hub aims to give the bleeding disorders community up-to-date information and knowledge about new and emerging treatments to support them to make informed decisions in discussion with their Haemophilia Treatment Centre, along with their partner or family. Visit the hub.
WOMAG (Women and Girls Advisory Group)
In February, our Women and Girls Advisory Group (WOMAG) gathered in Sydney for their first workshop.
Recognising the work that needs to be done to represent and support women and girls more effectively, HFA Council has established WOMAG to advise it on the needs and issues of women and girls affected by bleeding disorders and to propose a national strategic response. HFA are looking forward to seeing how this amazing group will help to shape the future for women and girls with bleeding disorders in Australia.
Community Engagement – Peer Support
In our community, peer support brings people together through events run by our state and territory foundations right across the country. These moments are so important – they give people the chance to connect, share experiences, build confidence, and feel like they truly belong. There have been a number of events hosted such as family camps staycations, Christmas parties, youth events and men’s lunch and women’s event such as brush and sip.
So many people place their trust in HFA – and in our supporters – and we carry that responsibility with great care.
With your support, we can keep building on this, continuing our peer support activities, research initiatives, and vital advocacy efforts. Together, we’re making sure people living with a bleeding disorder, at all ages and stages of life, get the care and support they need to live active, independent and fulfilling lives.
If you’d like to learn more about any of these projects or our plans moving forward, please feel free to reach out to HFA at hfaust@haemophilia.org.au.
