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WFH Summit: new therapies and approaches
WFH CCS topics included health literacy in shared decision-making, new therapies for VWD and women and girls with bleeding disorders.
Gene and emerging therapies in haemophilia
Exciting advancements in gene therapy and other emerging treatments for haemophilia were presented at the Blood 2024 conference.
Haemophilia Treatment Preferences Survey
(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’ treatment goals? Results presented are based on a study conducted by Community and Patient Preference...
New VWD fact sheet
Find answers to your FAQs about von Willebrand disease (VWD) in our new fact sheet – symptoms, types, inheritance, diagnosis and treatment.
Haemophilia gene therapy snapshot survey
HFA’s haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.
ISTH 2024 Congress: novel therapies
Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.
New haemophilia booklet
The new HFA Haemophilia booklet is now available. The 2023 edition has been revised completely to take new haemophilia treatments into account. It is a great introductory resource about haemophilia that is very useful for...
A unique conference
The Co-Chairs of the 2025 Conference explain what’s special about the Australian Bleeding Disorders Conference.
Australian Bleeding Disorders Conference
The Australian Bleeding Disorders Conference will be held in Brisbane from 16-18 October 2025. Find out more and register now!
Bleeding Disorders Awareness Month
In October 2025, we are raising awareness of bleeding disorders in Australia with Bleeding Disorders Awareness Month.
Don’t get lost in transition
How can young people with bleeding disorders make the transition from paediatric to adult care without falling through the cracks?
From the President
As we head into spring, a lot is happening – Bleeding Disorders Awareness Month, the Conference, hepatitis C advocacy, Cambodia Twinning and a new logo!
Haemophilia, fractures and bone density
Haemophilia physiotherapist Abi Polus explains low bone density and why people with haemophilia can have osteoporosis and fractures.
HFA and hepatitis C
HFA’s hepatitis C advocacy for our bleeding disorders community aims to address ongoing impacts: recognition and financial and support needs.
ISTH 2025 – emerging therapies in haemophilia and VWD
At ISTH 2025 researchers shared advances in emerging therapies for haemophilia and von Willebrand disease (VWD).
MyABDR education resources survey
What education materials would help with using the MyABDR app? Complete the HFA survey to give your views.
Navigating factor X deficiency
How do haemophilia nurses support people with factor X (10) deficiency? And Bel shares her personal story.
Playing competition sport
Will tells his story of playing competition soccer and how he manages his haemophilia to play high level sport.