Haemophilia: A guide for parents of a newly diagnosed child
Haemophilia: A guide for parents of a newly diagnosed childA comprehensive guide for parents. It aims to help parents understand all the issues they will encounter when their child is diagnosed with haemophilia. It also covers growth and development, parenting a child with haemophilia, exercise and sport. Information on support and contact details of services are also included. (Oct 2017)
Bleeds – Emergency checklist cardSteps on what to do if your child has symptoms that concern you. |
Recognising a bleed cardA checklist of what to look for to recognise if your baby or small child is having a bleed. |
Title pages; how to use this guideThe title page and acknowledgements, along with instructions on how to use this guide. |
Chapter 1 – Your child has haemophiliaThe first things parents need to know when their child is diagnosed with haemophilia:
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Chapter 2 – Understanding haemophiliaThe basics about haemophilia for you and your child:
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Chapter 3 – Bruises and bleedsUnderstanding the signs and symptoms of haemophilia in a small child and what to do about them:
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Chapter 4 – Treatment and health managementExplaining what treatment and care for a child with haemophilia involves:
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Chapter 5 – Growing up with haemophiliaHow can you support your child in their development as they grow up?
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Chapter 6 – Movement, exercise and sportThe benefits of physical activity for children with haemophilia and how to exercise safely.
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HTC and Foundation contact detailsClick here to find contact details of Haemophilia Treatment Centres (HTCs) Click here to find the contact details of state/territory and national Haemophilia Foundations |
Chapter 8 – GlossaryWondering what the terms and abbreviations mean? This glossary explains them in plain language |
Chapter 9 – More informationReferences and further reading |
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This education resource was funded by the donations of many individuals to Haemophilia
Foundation Australia and an education grant from Pfizer.