Haemophilia: A guide for parents of a newly diagnosed child
A comprehensive guide for parents. It aims to help parents understand all the issues they will encounter when their child is diagnosed with haemophilia. It also covers growth and development, parenting a child with haemophilia, exercise and sport. Information on support and contact details of services are also included. (May 2026)
Download the full guide – LARGE FILE – PDF 36MB
Bleeds – Emergency checklist cardSteps on what to do if your child has symptoms that concern you. |
Recognising a bleed cardA checklist of what to look for to recognise if your baby or small child is having a bleed. |
Title pages; how to use this guideThe title page and acknowledgements, along with instructions on how to use this guide. |
Chapter 1 – Your child has haemophiliaThe first things parents need to know when their child is diagnosed with haemophilia:
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Chapter 2 – Understanding haemophiliaThe basics about haemophilia for you and your child:
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Chapter 3 – Bruises and bleedsUnderstanding the signs and symptoms of haemophilia in a small child and what to do about them:
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Chapter 4 – Haemophilia treatments and health managementExplaining what treatment and care for a child with haemophilia involves:
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Chapter 5 – Growing up with haemophiliaHow can you support your child in their development as they grow up?
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Chapter 6 – Movement, exercise and sportThe benefits of physical activity for children with haemophilia and how to exercise safely.
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HTC and Foundation contact detailsContact details of:
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Chapter 8 – GlossaryWondering what the terms and abbreviations mean? This glossary explains them in plain language |
Chapter 9 – More informationReferences and further reading |
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This education resource was published with the support of the donations of many individuals to Haemophilia Foundation Australia and an education grant from Takeda.