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Haemophilia self-management tips

Self-management tips for people with haemophilia

  • Stay in regular contact with your local Haemophilia Treatment Centre team and make sure you keep up-to-date with anything new. 
  • A regular review may be recommended by your Haemophilia Treatment Centre, depending on the severity of your bleeding disorder and your individual needs.
  • Report all joint or muscle bleeding to your Haemophilia Treatment Centre team so that each episode can be properly assessed and rehabilitated.
  • Keep a diary of bleeding episodes, for example, using the MyABDR app.
  • Track your menstrual periods and seek help from your doctor if they are a problem.

Informing other health care professionals

If you have haemophilia:

  • Know your diagnosis. Do you have haemophilia A or B? What is your level of severity?
  • If you use treatment product, know which one you use and your usual dose.
  • Always carry your ABDR patient card and show it to doctors, nurses, dentists, ambulance officers, emergency departments and other health professionals who provide your care. 
  • Set up your emergency ID and keep a copy of your ABDR patient card on your phone. You may also wish to wear a medical alert bracelet or necklace.
  • Always tell your doctor, dentist, surgeon, gynaecologist or obstetrician you have a bleeding disorder before having any procedures, no matter how minor – and contact your HTC ahead of time to check any medical support required.
  • Before you start taking anything prescribed by your doctor, naturopath or other health practitioner, check with them or your pharmacy whether it is safe for someone with a bleeding disorder.


Date last reviewed: 1 September 2023

Important Note: This information was developed by Haemophilia Foundation Australia for education and information purposes only and does not replace advice from a treating health professional. Always see your health care provider for assessment and advice about your individual health before taking action or relying on published information. This information may be printed or photocopied for educational purposes.

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