No 187 September 2014

In this issue

Do you know someone who is a good buddy to a person living with a bleeding disorder? Do you think…

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia If any of us thought there would be time to slow…

LYN WONG Lyn Wong is a member of Haemophilia Foundation NSW This article is adapted from the article in Factor…

JANINE FURMEDGE Janine Furmedge is the Haemophilia Nurse Coordinator at the Royal Children’s Hospital, Melbourne Prophylaxis with factor concentrates has…

Photo: Prof. Kevin Rickard receiving the Award from Alain Weill, WFH President (Photo:WFH) It was with great pleasure that we…

Susie is an Australian community member with von Willebrand disorder (VWD) Hindsight is 20/20 or so they say… I keep…

Read Female Factors: information for young women with bleeding disorders for updated info on VWD in women and girls   Heavy…

HFA is continuing with its work to develop information resources for women and teenage girls with bleeding disorders. WOMEN'S RESOURCES…

Do you have a daughter with a bleeding disorder aged 13-25 years? HFA is currently developing new information resources for…

Do you have a bleeding disorder? Are you aged between 13-30 years? Do you carry the gene – or think…

HFA welcomes the recommendation of the PBAC to add simeprevir (Olysio™) to the Pharmaceutical Benefits Scheme (PBS) for the treatment…

World Hepatitis Day was marked internationally on 28 July 2014. This year the focus was on checking your liver health…

SHARON CARIS Sharon Caris is Executive Director, Haemophilia Foundation Australia It was great that so many South Australians were able…

SUZANNE O'CALLAGHAN Suzanne O'Callaghan is Policy Research and Education Manager, Haemophilia Foundation Australia Photo right: Jenny Ross at the Witness…

Since 1 July 2014 there have been important changes to the aged care system managed by the Australian Government. This…

SUZANNE O'CALLAGHAN, PETER O'HALLORAN AND LACHLAN MENG  Suzanne O'Callaghan is Policy Research and Education Manager, Haemophilia Foundation Australia Peter O’Halloran…

If you have problems with the MyABDR app or web site at any time of day or night, you can…

HANNAH OPESKIN Hannah Opeskin is Health Promotion Officer, Haemophilia Foundation Australia Although the World Congress has been and gone, life…

Photo right: Hamish and Sam at the MyABDR focus group SAM I feel that it is important for young people…

Red Cake Day during Haemophilia Awareness Week is around the corner. Haemophilia Awareness Week is an opportunity for Haemophilia Foundations…

Save the date! 17th Australian & New Zealand Conference on haemophilia & related bleeding disorders 1 – 3 October 2015…

Haemophilia Awareness Week 12-18 October 2014 Tel: 03 9885 7800 Fax: 03 9885 1800 Email: hfaust@haemophilia.org.au World Haemophilia Day 17…

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