December 2025 Newsletter

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The end of the year is upon us! But before we welcome 2026, we have a massive newsletter for you.

First, a little bit of housekeeping – the HFA office will close on Wednesday 24 December 2025 and reopen on Monday 12 January 2026. If you need to contact us during the break please email hfaust@haemophilia.org.au or call 03 9885 7800. Messages will be monitored.

During the Conference we recorded videos with health professionals and community members. See below for an interview with Prof Cedric Hermans on new treatments (and more!), and a conversation between Nicola and Will about navigating severe haemophilia and a passion for sport.

This newsletter we also share our 2024/25 annual report, updates to the Getting Older Hub, including a newly featured article on pain, and some important dates for you to add to your calendar.

The HFA Council and Staff wish you all the best for the festive season.

Interview with Prof Cedric Hermans

HFA met with Prof Cedric Hermans during the Australian Bleeding Disorders Conference 2025 to discuss his presentation on the changing landscape of haemophilia treatments, women and girls with haemophilia, and the importance of diagnosis.

Prof Cedric Hermans is from Saint-Luc University Hospital, Belgium, and was our international keynote speaker at the Conference.

HFA Annual Report 2024/25

See what HFA have been up to over the past financial year. Read updates from our Council and Staff, discover the work we’re doing to educate and advocate for our community, and join us in thanking the individuals and organisations who support us throughout the year.

Getting Older Hub

The Getting Older Hub has had a facelift! See what’s new and learn about how to live well when you are getting older and have a bleeding disorder. Read articles, tips and personal stories from members of the community.

Most recently, we’ve featured an article by Senior Physiotherapist, Cameron Cramey on exercise and movement for persistent pain.

Recording treatment in MyABDR

Are you using MyABDR to record your treatment? Julia Ekert, Haemophilia Data/Product Manager at the Royal Children’s Hospital Melbourne, suggested that people use MyABDR functions as a memory prompt.

“MyABDR works as a really good recording tool to remind you when you need to do your next dose. These days when you’re giving yourself or your child treatment less frequently, it can be hard to remember.”
– Julia Ekert, Haemophilia Data/Product Manager

World AIDS Day

World AIDS Day is marked globally on 1 December. In 2025 the theme is No one left behind.

On World AIDS Day we pause and underline the need to:

• show our support for people living with HIV
• raise awareness about prevention, treatment and care
• eliminate stigma and discrimination around HIV
• remember and honour the people we have lost to HIV.

It’s also an opportunity to tackle inequities in HIV prevention, testing, treatment and quality of life, both in Australia and internationally.

New video: Nicola and Will 

“It’s like, I don’t even have haemophilia. I don’t always have to be thinking about it, watching my every move. I’m allowed to just hang out with my mates, do whatever I want, play all the sport that I could ever imagine.”

Nicola and her son, Will, share their journey with haemophilia. Will is a keen athlete, playing elite soccer as a teen with hopes to go professional. He explains how he works closely with his HTC to prevent bleeds and ensure his bleeding disorder has minimal impact on his sporting dreams.