The June 2025 National Haemophilia is now available to read online and in print. In this issue we feature:
- World Haemophilia Day
- WFH Comprehensive Care Summit & EAHAD
- Australian Bleeding Disorders Conference 2025
- Period products and creating a period kit
- Identifying girls and women affected by haemophilia
- VWD fact sheet
- WFH youth leadership training
Thank you so much to the community members and health professionals who contribute to National Haemophilia. Your insights and expertise are invaluable.
World Haemophilia Day
On 17 April we recognised World Haemophilia Day. This year’s theme, ‘Access for all: Women and girls bleed too’ was a worldwide call to action to close the gaps in care for women and girls with bleeding disorders, who often face delayed diagnosis, limited access to treatment, and a lack of understanding about their unique needs.
We were amazed to see over 100 landmarks across Australia light up red to show support for the bleeding disorders community, and thank everyone who participated. Read the article.
Australian Bleeding Disorders Conference 2025
Planning is well underway for the Australian Bleeding Disorders Conference. Visiting Brisbane from 16-18 October, the Conference is an opportunity to connect with others in the bleeding disorders community. Share, learn and hear from different perspectives on current trends, emerging and new therapies, challenges, insights and more. A preliminary program is now available. Find out more.
Women and girls
Identifying and supporting women and girls with bleeding disorders is a priority for our community. In this issue of National Haemophilia, Lara Nicholson, Senior Social Worker at QLD HTCs, explains how both the paediatric and adult HTCs in Queensland have clinics that aim to identify women and girls affected by haemophilia, and how this approach works. Community members, Rebecca and Laila share their experiences of the process.
Laura Bardell, registered counsellor and former midwife, continues her series on menstruation, walking us through the range of period products available and how to create a period kit.
WFH Comprehensive Care Summit & EAHAD
The WFH Comprehensive Care Summit took place on 23-25 April 2025 in Dubai, UAE. The Summit is one of the World Federation of Hemophilia (WFH)’s major meetings and focused on new developments in bleeding disorders and musculoskeletal issues (MSK).
We were fortunate to have a number of Australian health professional and community delegates who attended the Summit and the associated WFH meetings. In this issue of National Haemophilia they share their reflections on the Summit and highlights from the meetings.
HTC Director Dr Liane Khoo writes about health literacy, new VWD therapies and approaches to women and girls, while haemophilia physiotherapists Alison Morris and Elise Mosey explore new and complex treatment challenges and what can point-of-care ultrasound tell us. Australian youth delegate, Alan Dursun shares his experience attending the WFH youth leadership training.
In February, Yuhsuan (Yoshi) Lin headed to Milan, Italy for EAHAD. This event brought together specialists not only from across Europe but also from around the world, creating a collaborative space to explore the latest research and key developments in patient management over the lifespan – particularly in the area of psychological care. Read her report.
Other news
Also featured in this issue of National Haemophilia, Gavin Finkelstein brings us up to speed on the latest developments in his President’s Report, AHCDO Research Fellow, Ashley Fletcher, talks about his first year with the ABDR, and there is a reminder on where to access the VWD fact sheet, and when to use it.
I hope you enjoy reading National Haemophilia!
