Items tagged 'Rare Disease Day'

Rare Disease Day 2024

19 March 2024

In 2024 Rare Disease Day is celebrated worldwide on 29 February to raise awareness and generate change for people with rare diseases. It is an opportunity to share personal stories and acknowledge the challenges for our community members who live with a rare bleeding disorder.

Rare Disease Day 2024

29 February 2024

Today is Rare Disease Day – a rare leap year day and very fitting for a worldwide event to raise awareness and generate change for people with rare diseases.

Growing up with Glanzmann thrombasthenia

28 February 2024

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Living life actively with VWD

19 July 2023

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

Rare Disease Day 2023

20 March 2023

Rare Disease Day is celebrated worldwide on 28 February to raise awareness about the experience of people with rare diseases….

From the President

Gavin Finkelstein -
14 March 2022

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia RAISING AWARENESS On 17 April we join the global community in celebrating…

Rare Disease Day 2022

14 March 2022

Rare Disease Day is celebrated worldwide on 28 February to raise awareness about the experiences of people with rare diseases. The…

Youth News – Getting the message out

14 March 2022

My name’s Adam. I am 17 years old and I have severe haemophilia A. Why do I raise awareness? To…

Rare Disease Day 2021

23 March 2021

Rare Disease Day was celebrated globally on 28 February 2021 to raise awareness about the experiences of people with rare…

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Rare Disease Day'

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