Items tagged 'Rare Disease Day'

Rare Disease Day 2026

18 March 2026

On Rare Disease Day we strive for equity in social opportunities, healthcare and access to diagnosis and therapies for people with rare bleeding disorders.

Rare Disease Day 2026

26 February 2026

28 February is Rare Disease Day – a worldwide event to raise awareness and generate change for people with rare diseases

Rare Disease Day 2025

26 March 2025

Rare Disease Day was celebrated on 28 February 2025 to raise awareness and generate change for people with rare diseases, including rare bleeding disorders.

Rare Disease Day 2025

27 February 2025

28 February is Rare Disease Day – a worldwide event to raise awareness and generate change for people with rare diseases.

In 2024 Rare Disease Day is celebrated worldwide on 29 February to raise awareness and generate change for people with rare diseases. It is an opportunity to share personal stories and acknowledge the challenges for our community members who live with a rare bleeding disorder.

Rare Disease Day 2024

29 February 2024

Today is Rare Disease Day – a rare leap year day and very fitting for a worldwide event to raise awareness and generate change for people with rare diseases.

Growing up with Glanzmann thrombasthenia

28 February 2024

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.