Items tagged 'Research'

AHCDO Targeted Research projects 2025

Ashley Fletcher -
16 December 2025

In 2025 AHCDO funded three research projects to address key knowledge gaps and urgent needs in bleeding disorders.

Gene therapy and you

Amanda Rush -
16 December 2025

An Australian research study reports on the views of people with blood disorders, their carers, and the general public on gene therapy.

ISTH 2025 – emerging therapies in haemophilia and VWD

Ashley Fletcher -
17 September 2025

At ISTH 2025 researchers shared advances in emerging therapies for haemophilia and von Willebrand disease (VWD).

PROBE Australia Study update

17 September 2025

Help us reach our PROBE Australia Study targets. We still need about 90 men without a bleeding disorder to complete the survey.

One year with the ABDR

Ashley Fletcher -
17 June 2025

It has been a rewarding year supporting research with data collected in the Australian Bleeding Disorders Registry (ABDR).

Can you help with the PROBE study

26 March 2025

HFA is still recruiting people to complete the PROBE Australia Study.

Haemophilia Treatment Preferences Survey

CaPPRe -
26 March 2025

(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’…

Can you help with PROBE?

11 December 2024

People without a bleeding disorder are also needed for the PROBE Australia Study to research the impact of haemophilia.

HaemPref (Haemophilia Treatment Preferences) Survey

26 September 2024

If you or your child have haemophilia, please share your view on new treatments in the HaemPref (Haemophilia Treatment Preferences) Survey.

Haemophilia gene therapy snapshot survey

Suzanne O'Callaghan -
11 September 2024

HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.

Items tagged 'Research'

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