Items tagged 'Women & girls'

When and how to seek help for adolescent girls with bleeding disorders when they have heavy periods.
It's Women's Health Week! To celebrate we're diving into a variety of topics from knowing your body and tackling taboos, to advocating for yourself.
Sessions on women and girls at the WFH 2024 World Congress had a strong message that it’s time for action on female-specific research, treatment and care.
This session discussed the work of women advocates to overcome the general and longstanding misunderstanding that women are only carriers and do not have bleeding disorders.
Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth talks about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
Allison was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.
How do you encourage women to take some time out to focus on their own needs? Lauren talks about peer support activities for women at Haemophilia Foundation Queensland.
Today we celebrate the women in the bleeding disorders community – whether they’re women with bleeding disorders or mums, partners, daughters, sisters, nurses, doctors, social workers or counsellors, physios, researchers, or carers. Thank you for being part of our community and advocating for us!

Susie’s story Susie shared her personal story of living with type 1 VWD at the 21st Australian Conference on haemophilia,…

STEPHEN MATTHEWS Stephen Matthews is Clinical Nurse Consultant Haemophilia at the Royal Prince Alfred Hospital, Sydney, NSW Pregnancy, childbirth and…

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