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Bleeding Disorders
FAQs & Fast Facts
Haemophilia
Von Willebrand Disease
Other Bleeding Disorders
Acquired haemophilia
Factor I Deficiency
Factor II Deficiency
Factor V Deficiency
Combined Factor V and Factor VIII Deficiency
Factor VII Deficiency
Factor X Deficiency
Factor XI Deficiency
Factor XIII Deficiency
Inherited platelet function disorders
Glanzmann thrombasthenia
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National Haemophilia Journal
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Items tagged 'Women & girls'
National Haemophilia Journal
Congress – improving diagnosis and care for WGBD
Joanna McCosker -
30 June 2026
Conferences and meetings
,
Treatment & care
,
Women & girls
comprehensive care
,
diagnosis
,
girls
,
WFH World Congress
,
Women
Joanna McCosker reports on the Congress workshop to improve diagnosis and care for women and girls with bleeding disorders.
Read more
National Haemophilia Journal
Congress – Nurse-led care
Shirley Wong -
30 June 2026
Conferences and meetings
,
Joints & muscles
,
Nursing management
,
Treatment & care
,
Women & girls
girls
,
musculoskeletal management
,
nursing care
,
WFH World Congress
,
young women
Shirley Wong reports on sessions about nurse-led clinics and multidisciplinary joint management at the WFH 2026 World Congress.
Read more
National Haemophilia Journal
Congress: Mental health – adherence and chronic fatigue
Jane Portnoy -
Bleeding disorders
,
Conferences and meetings
,
Treatment & care
,
Women & girls
adherence
,
anaemia
,
chronic fatigue
,
girls
,
haemophilia
,
WFH World Congress
,
Women
Jane Portnoy reports on Congress sessions about adherence to treatment and chronic fatigue in women and girls.
Read more
National Haemophilia Journal
HFA Women bleed too survey
Suzanne O'Callaghan -
30 June 2026
Advocacy
,
Bleeding disorders
,
Research
,
Women & girls
girls
,
health care settings
,
self-advocacy
,
surveys
,
Women
The HFA Women Bleed Too survey explored the experiences of Australian women and girls with bleeding disorders in health care settings.
Read more
National Haemophilia Journal
From the President
Alan Dursun -
30 June 2026
Advocacy
,
Conferences and meetings
,
HFA & Foundation news
,
Women & girls
blood supply
,
girls
,
Lifeblood
,
representation
,
WFH World Congress
,
Women
Alan Dursun, HFA President, reflects on the WFH World Congress, women and girls with bleeding disorders and other relevant news.
Read more
News & Stories
HFA Women’s Workshop
18 May 2026
Advocacy
,
Events
,
HFA & Foundation news
,
Women & girls
HFA is hosting an informative and inspiring two day women's workshop with Dawn Rotellini in July
Read more
News & Stories
Michelle – Her journey to diagnosis
16 April 2026
Haemophilia
,
Personal stories
,
Women & girls
WHD2026
Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis
Read more
News & Stories
VWD: Your voice matters – Sophie’s story
7 April 2026
Family Planning and Pregnancy
,
Personal stories
,
Von Willebrand disease
,
Women & girls
Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others
Read more
National Haemophilia Journal
My platelets are like bricks without cement
Carly -
18 March 2026
Growing up with a bleeding disorder
,
Inherited platelet function disorders
,
Rare bleeding disorders
,
Women & girls
Glanzmann thrombasthenia
,
nosebleeds
,
periods
,
sport
,
Women
Carly shares her tips for living well with Glanzmann thrombasthenia, a rare inherited platelet disorder.
Read more
National Haemophilia Journal
Why test for haemophilia in women and girls?
18 March 2026
Haemophilia
,
Women & girls
ABDR
,
diagnosis
,
factor level testing
,
genetic testing
,
girls
,
haemophilia
,
Women
Testing for haemophilia in women and girls is crucial as many are not yet diagnosed and registered with the national Bleeding Disorders Registry.
Read more
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