Items tagged 'HFA & Foundation news'

Today is World Haemophilia Day. Every year on 17 April, World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and other inherited bleeding disorders. This is a critical effort since with increased awareness comes better diagnosis and access to care for the millions who remain without treatment.
The March 2024 National Haemophilia is now available to read on our website. In this issue we highlight World Haemophilia Day, Rare Disease Day, Glanzmann thrombasthenia, women and peer support, FIFO workers, and mental health.
The team has changed recently at HFA. Natashia Coco has taken on the role of Executive Director (Acting) and we welcome Pauline Hill as our Digital Communications Manager.
Another exciting year ahead and the HFA staff have hit the ground running in 2024.
Over the past year the HFA team, together with our website developer, Heartburst, have been designing and building a new website for haemophilia.org.au. Check it out - and let us know if you find anything broken!
The 2024 funding round for the Damon Courtney Memorial Endowment Fund (DCMEF) is now open.
Today we celebrate the women in the bleeding disorders community – whether they’re women with bleeding disorders or mums, partners, daughters, sisters, nurses, doctors, social workers or counsellors, physios, researchers, or carers. Thank you for being part of our community and advocating for us!
Today is Rare Disease Day – a rare leap year day and very fitting for a worldwide event to raise awareness and generate change for people with rare diseases.
We are building evidence about the needs of men and women affected by haemophilia in Australia.
HFA has a new website! You'll find all of the same great content and information, but in brand new packaging. Over the past 12 months we've been working hard with the team at Heartburst to modernise the HFA website. We have great plans for new features to be added in 2024, so please be patient with us while we're in the process of developing them.

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