You may have noticed some personal stories from women with bleeding disorders or who carry the gene in recent issues of National Haemophilia.
This is part of the work of the HFA Women’s Project. Thanks to the women who have agreed to be part of the project and share their experiences or contribute to the new HFA education resources!
The education resources include two booklets for women, one on carrying the gene for haemophilia and the other on living with a bleeding disorder. They are underway and being drafted as we speak. They will be available in print and online.
How to be involved?
If you are a woman who carries the gene or have bleeding symptoms, and would like to be involved in the project, it’s not too late – contact Suzanne O'Callaghan at HFA:
T: 1800 807 173 (Mon-Fri)
We have had a great response from young women and teenage girls with bleeding disorders and parents – thanks to all who have completed the online survey!
Your answers and ideas will be used to develop information resources specifically targeted at young women and teenage girls in the 13-25 age group. These are being developed in addition to the two new booklets for women.
For more information about this project, contact Hannah Opeskin at HFA:
T: 1800 807 173 (Mon, Tue, Fri).
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