No 200 December 2017

The Rt Hon Sir Ninian Stephen, HFA’s Patron for many years, died on 29 October 2017, aged 94. Sir Ninian…

GAVIN FINKELSTEIN Gavin Finkelstein is President, Haemophilia Foundation Australia I was very much looking forward to the 2017 Conference in…

This is issue 200 of National Haemophilia. We thought we would take the opportunity to look back over the previous…

And Red Cake Day 2017 Bleeding Disorders Awareness Week and Red Cake Day was held this year from 8-14 October…

The 18th Australian & New Zealand Conference on Haemophilia & Rare Bleeding Disorders held in October in Melbourne went very…

For the sixth year a group of cyclists led by Dr Simon McRae and Andrew Atkins will ride as Team.Factor…

World AIDS Day is marked internationally on 1 December. In 2017 the World AIDS Day national theme is HIV is…

The HFA Council and staff wish you a happy and safe festive season. Thank you for your support during 2017…

WHAT DID THE DELEGATES SAY? Delivered on the theme of ‘Looking forward to change’. It is very hard to target…

A Foundation Perspective Daniel Credazzi is Vice-President, Haemophilia Foundation Australia and President, Haemophilia Foundation New South Wales. Dan Credazzi spoke…

A personal story Paul Paul is an Australian community member with haemophilia B This is a transcript of Paul’s presentation…

Plenary: Dr Justin Coulson The Conference opened with a plenary session on family relationships from Dr Justin Coulson, who is…

Sue Webzell Sue Webzell is Haematology Nurse at the Hollywood Haemophilia Treatment Centre, Hollywood Private Hospital, Perth NURSES GROUP MEETING Pre-conference…

A personal experience Simon Simon is an Australian community member with haemophilia who has been cured of hepatitis C. He…

Anth Anth is an Australian community member with haemophilia and HIV This is a transcript of Anth’s presentation at the…

Johanna Newsom Johanna Newsom is the Deputy Head of Physiotherapy at the Children’s Hospital at Westmead, Sydney Australia   PAIN…

Jane Portnoy Jane Portnoy is Social Worker – Haemophilia at The Alfred hospital, Melbourne YOUTH MYTH BUSTING Chair: Moana Harlen…

Suzanne O'Callaghan Suzanne O'Callaghan is HFA Policy Research and Education Manager Photo right: Dr Paula James presenting on women and…

A personal story Susie Susie is an Australian community member. She has von Willebrand disorder (VWD) type 1 and her…

Sumit Parikh Sumit Parikh is the AHCDO ABDR Senior Research Fellow In the June issue of National Haemophilia, I provided…

Conference experiences from youth delegates What was your favourite session in the Conference?  The gene therapy session because it showed…