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Have you caught up on the 2021 Conference on demand?
With over 30 Australian and international speakers and a range of stimulating and informative sessions, there is so much for you to see. Don’t miss out – it will be available on demand until April 2022.
Simply visit the Conference portal, log in and click Program on Demand to find and watch sessions.
If you didn't get a chance to register, you can still buy a ticket on the Conference portal and access this great content. Tickets are currently on sale for 50% off!
Visit the Conference portal at
https://haemophilia.delegateconnect.co/
Need to register first? click on REGISTER NOW
CONFERENCE PROGRAM 2021 – ON DEMAND SESSIONS
| FRIDAY 8 OCTOBER 2021 | |||
| 0855 | Official Conference Welcome & Acknowledgement of Country | ||
| Gavin Finkelstein, President, HFA and Dr Ritam Prasad, Conference Co-chair | |||
| 0900-1015 | Plenary 1 – The changing world of bleeding disorders | ||
| Chair: Dr Ritam Prasad | |||
| Short personal stories Overview of the Australian experience – spectrum of changes in bleeding disorders over the years ~ Prof Huyen Tran, Director, The Ronald Sawers Haemophilia Treatment Centre, The Alfred Melbourne, VIC Are we there yet? The innovative future of bleeding disorders treatment ~ Dr David Lillicrap, Professor, Department of Pathology and Molecular Medicine at Queen’s University, Kingston, Canada An overview of the impact of advances in treatment on quality of life and independence and on clinical practice. ~ Dr Liane Khoo, Haematologist, Director, Haemophilia Treatment Centre, Royal Prince Alfred Hospital, Sydney NSW Q&A |
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| 1045-1215 | Concurrent 1 – Managing bleeds under current new treatments |
Concurrent 2 – VWD |
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| Chair: Jane Portnoy | Chair: Susie Couper | ||
| The impact of new haemophilia treatments on people with haemophilia, parents and health professionals ~ Jane Portnoy, Social Worker, The Ronald Sawers Haemophilia Treatment Centre, The Alfred, Melbourne, VIC Patient experiences ~ Lenny, Leah, Bruce Understanding bleeds under new treatments ~ Dr Julie Curtin, Senior Staff Specialist & Head of Haematology/Blood Bank at The Children’s Hospital at Westmead, Sydney NSW Panel discussion and Q&A Physiotherapist ~ Alison Morris, Senior Musculoskeletal Physiotherapist, Perth Children’s Hospital, WA Nurses ~ Joanna McCosker, Haemophilia Nurse Practitioner, Queensland Children’s Hospital And Beryl Zeissink, Clinical Nurse Consultant, Haemophilia Queensland Haemophilia Centre, Royal Brisbane & Women’s Hospital |
VWD personal experience ~ Perry VWD genetics, diagnosis and classification ~ Dr Simon McRae, Clinical and laboratory Consultant Haematologist, Launceston General Hospital, TAS VWD personal experience ~ Simoni VWD treatment and future directions ~ Dr Nathan Connell, Associate physician, Hematology Division Brigham and Women’s Hospital, Assistant Professor of Medicine at Harvard Medical School, and Clinical Chief of Hematology at Brigham and Women’s Faulkner Hospital |
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| 1325-1455 | Concurrent 3 – Sex, sexuality and intimacy | Concurrent 4 – Women and girls |
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| Chair: Scott Russell | Chair: Sharron Inglis | ||
| Awkward conversations – Talking about sex and intimacy ~ Simone Sheridan, Sexual Health Nurse Consultant – Austin Health WFH video – ASK ME ANYTHING – Can sex cause a bleed? Q&A with panel of experts: Haematologist ~ A/Prof Chris Barnes, Director of the Henry Ekert Haemophilia Treatment Centre at the Royal Children’s Hospital, Parkville, VIC Sexual health nurse consultant with disability expertise ~ Simone Sheridan Austin Health Social worker ~ Alex Coombs ,Social Worker, Ronald Sawers Haemophilia Centre, The Alfred, Melbourne, VIC Physiotherapist ~ Scott Russell, Physiotherapy, Royal Brisbane & Women’s Hospital, Brisbane QLD Haemophilia nurse ~ Penny McCarthy, Haemophilia Clinical Nurse Consultant, Ronald Sawers Haemophilia Centre, The Alfred |
Introduction and personal story ~ Sharron Inglis Understanding, recording and reporting bleeding symptoms in girls and women ~ Joanna McCosker, Haemophilia Nurse Practitioner, Queensland Children’s Hospital, Brisbane QLD ~ Jaime Chase, Haematology Clinical Nurse Specialist, John Hunter Children’s Hospital New clinical approaches in managing women and girls with bleeding disorders across the lifespan ~ Dr Mandy Davis, Clinical Haematology, Laboratory Haematology, The Alfred, Melbourne VIC Gynaecological issues for women and girls with bleeding disorders ~ Dr Angela Dunford, Obstetrician Gynaecologist, John Hunter and John Hunter Children’s Hospitals Newcastle, NSW Sport and exercise for girls and women ~ Hayley Coulson, Physiotherapist, Queensland Children’s Hospital, Brisbane, QLD |
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| 1800-1830 | Remembrance Service |
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| SATURDAY 9 OCTOBER 2021 | |||
| 0900-1015 | Plenary 3 – Pain | ||
| Chair: Dr Liane Khoo | |||
| What’s new in pain? Is it different now with new treatments? ~ Dr Liane Khoo, Haematologist, Director, Haemophilia Treatment Centre, Royal Prince Alfred Hospital, Sydney, NSW Pain in haemophilia ~ Mr Paul McLaughlin, Clinical Specialist Physiotherapist in Haemophilia, Katharine Dormandy Haemophilia Centre at Royal Free Hospital in London, United Kingdom A body and mind approach for pain management in people with bleeding disorders ~ A/Prof Carolyn Arnold, Head of Pain Management. Alfred Health, Melbourne, VIC Patient personal perspective on chronic pain ~ Diana Harte, psychologist, interviewing Dylan Osteoarthritis, exercise and pain: the GLA:D® program. ~ Dr Christian Barton, Associate Professor, Physiotherapy Dept, LaTrobe University, Melbourne Panel Q&A |
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| 1045-1215 | Concurrent 5 – Making the most of your health virtually |
Concurrent 6 – Exercise and resistance training | |
| Chair: Suzanne O'Callaghan | Chair: Abi Polus | ||
| Embracing health care futures: Global trends in consumer health care innovation and where they’re taking us ~ Dr Zaana Howard, Customer Experience and Design Leader + Transformational Coach Future digital healthcare environment in Australia ~ Bettina McMahon, Chief Executive Officer, Healthdirect Australia New experiences with diagnostics and programs in bleeding disorders – Australian case studies: Telehealth and physiotherapy ~ Scott Russell, Physiotherapist, Royal Brisbane & Women’s Hospital, Brisbane QLD Telehealth and infusion training ~ Erin Krake, Clinical Nurse Consultant, Henry Ekert Haemophilia Treatment Centre, Royal Children’s Hospital, Parkville VIC Panel discussion and Q&A Nurses & data manager – Janine Furmedge, Julia Ekert, Erin Krake Physiotherapist ~ Helen Dixon Social worker ~ Sharon Danilovic Patient ~ Neil |
Research into exercise for boys with haemophilia (DOLPHIN-II Trial) ~ Dr David Stephensen, Physiotherapist, the Kent Haemophilia and Thrombosis Centre, and the Haemophilia Centre at the Royal London Hospital, United Kingdom Less is more – getting the most out of limited time in the gym ~ Dr Mervyn Travers, Senior Research Scholar, School of Physiotherapy, The University of Notre Dame Australia, Perth, WA. Panel Q&A ~ Merv Travers, Abi Polus and Tim |
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| 1325-1455 | Concurrent 7 – Youth – challenges, taboos | Concurrent 8 – Getting older |
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| Chair: Robyn Shoemark | Chair: Jenny Lees | ||
| Growing up ~ Dale’s story Mother and Son journey through teenage years ~ Heidi & Sam
Monique Craft ~ Beautiful Minds |
Personal story ~ Zev Clinical issues with ageing ~ Prof Mike Makris, Professor of Haemostasis and Thrombosis at the University of Sheffield, United Kingdom Getting Older report – results and implementation ~ Suzanne O'Callaghan, Policy Research and Education Manager, Haemophilia Foundation Australia, Melbourne, VIC Panel Discussion What are the issues and challenges ahead? Facilitator ~ Suzanne O'Callaghan Nurse ~ Stephen Matthews Physiotherapist ~ Frankie Mullen Psychosocial worker ~ Kathryn Body |
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| 1535-1700 | Plenary 4 – Where to from here? |
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| Chair: Dr Ritam Prasad | |||
| Haemophilia care in 2030 ~ Prof Mike Makris, Professor of Haemostasis and Thrombosis at the University of Sheffield, UK Where to from here? ~ Dr David Stephenson, Physiotherapist, the Kent Haemophilia and Thrombosis Centre, and the Haemophilia, Centre at the Royal London Hospital, UK My vision for treatment and care into the future: Young man with severe haemophilia ~ Alan Parent of children with haemophilia ~ Claude Woman with VWD ~ Shauna Bleeding disorders treatment and care into the future ~ Dr Ritam Prasad Director, Haemophilia Treatment Centre, Newcastle NSW Where to from here? Achieving the vision ~ Sharon Caris, Executive Director, Haemophilia Foundation Australia, Melbourne, VIC Panel discussion/Q&A |
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Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.
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