Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and other inherited bleeding disorders. This is a critical effort since with increased awareness comes better diagnosis and access to care for the millions who remain without treatment.
World Haemophilia Day was started in 1989 by the World Federation of Hemophilia (WFH), which chose 17 April as the day to bring the community together in honour of WFH founder Frank Schnabel’s birthday.
Did you know, WFH estimates that over 75% of people living with haemophilia worldwide have not yet been identified and diagnosed.
Haemophilia Foundation Australia is a WFH member organisation and many Australian volunteers have been involved with WFH programs. HFA has supported many programs over the years and participated in the WFH Twinning Program and various committees that work to achieve the objectives of WFH.
We are grateful that our community has access to high quality treatment but we recognise that many other parts of the world do not have access to diagnosis, treatment and care. Together as Australians, let’s take this opportunity to recognise this special day and put our support behind the worldwide effort for Access for All.
We have many locations and landmarks over Australia Lighting up Red in support of World Haemophilia Day. These locations will be listed on our website. Keep an eye out and share photos on our social media platforms.
We will also have some virtual activities available on our website.
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