Living with Glanzmann thrombasthenia

Allison’s story

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

Woman looking at camera. Image by Adrienn for

The experience of Glanzmann thrombasthenia varies from person to person and treatment requirements for each individual can take time to determine.

Initially Allison had treatment with platelet transfusions but developed antibodies to them, so that the treatment no longer worked. Since then, she has had treatment with recombinant coagulation factor VIIa (Novoseven ®) with minor procedures, and tranexamic acid for day-to-day bleeding, when needed.

Allison played netball until she was 12 years old and then transitioned to tennis as a non-contact sport.

Join the HFA community

Sign up for the latest news, events and our free National Haemophilia magazine

Skip to content