Items tagged 'Rare bleeding disorders'

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder. 

STEPHEN MATTHEWS Stephen Matthews is Clinical Nurse Consultant Haemophilia at the Royal Prince Alfred Hospital, Sydney, NSW Rare bleeding disordersChair…

RADHA RAMANAN Dr Radha Ramanan is the current Australian Haemophilia Centre Directors‚Äô Organisation (AHCDO) Research Fellow.¬† Dr Radha Ramanan received…

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

Rare Disease Day is celebrated worldwide on 28 February to raise awareness about the experience of people with rare diseases….

AHCDO John Lloyd Clinical Excellence Grant ANDREA JOHANNESSEN Dr Andrea Johannessen is AHCDO Executive Officer The Australian Haemophilia Centre Directors'…

GAVIN FINKELSTEIN President, Haemophilia Foundation Australia   RAISING AWARENESS   On 17 April we join the global community in celebrating…

Rare Disease Day is celebrated worldwide on 28 February to raise awareness about the experiences of people with rare diseases. The…

Rare Disease Day was celebrated globally on 28 February 2021 to raise awareness about the experiences of people with rare…

Join the HFA community

Sign up for the latest news, events and our free National Haemophilia magazine

Skip to content