Items tagged 'Rare bleeding disorders'

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.
Glanzmann thrombasthenia is a very rare hereditary platelet function disorder that affects the way that platelets work in the body.
Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth talks about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
Allison was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.
In 2024 Rare Disease Day is celebrated worldwide on 29 February to raise awareness and generate change for people with rare diseases. It is an opportunity to share personal stories and acknowledge the challenges for our community members who live with a rare bleeding disorder.
Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder. 

STEPHEN MATTHEWS Stephen Matthews is Clinical Nurse Consultant Haemophilia at the Royal Prince Alfred Hospital, Sydney, NSW Rare bleeding disordersChair…

RADHA RAMANAN Dr Radha Ramanan is the current Australian Haemophilia Centre Directors‚Äô Organisation (AHCDO) Research Fellow.¬† Dr Radha Ramanan received…

Adam is in his late 40s and has Type 3 von Willebrand disease (VWD), which is a severe form. He…

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