On Rare Disease Day we strive for equity in social opportunities, healthcare and access to diagnosis and therapies for people with rare bleeding disorders.
Carly is 22 and talks about living with Glanzmann thrombasthenia as a young person and the value of support, living your life, and putting your health first.
Rare Disease Day was celebrated on 28 February 2025 to raise awareness and generate change for people with rare diseases, including rare bleeding disorders.
