No 225 March 2024

National Haemophilia cover with Wrest Point casino lit up red

On World Haemophilia Day in April we will light up red around Australia to raise awareness about the range of bleeding disorders. Some bleeding disorders can be very rare and in this issue we mark Rare Disease Day with two personal stories about living with Glanzmann thrombasthenia. We also explore women and peer support, managing FIFO with a bleeding disorder, mental health, and the experiences and hopes of Ben, a youth leader.

In this issue

The 2024 funding round for the Damon Courtenay Memorial Endowment Fund (DCMEF) is now open.
The team has changed recently at HFA. Natashia Coco has taken on the role of Executive Director (Acting) and we welcome Pauline Hill as our Digital Communications Manager.
In 2024 Rare Disease Day is celebrated worldwide on 29 February to raise awareness and generate change for people with rare diseases. It is an opportunity to share personal stories and acknowledge the challenges for our community members who live with a rare bleeding disorder.
The Australian Haemophilia Centre Directors' Organisation (AHCDO) has a new committee and had a successful education day discussing women, VWD and gene therapy.
Over the past year the HFA team, together with our website developer, Heartburst, have been designing and building a new website for haemophilia.org.au. Check it out - and let us know if you find anything broken!
What events are coming up on the bleeding disorders calendar?

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