Items tagged 'Personal stories'

Acquired haemophilia – Jenny’s story

11 April 2024

Jenny shares her story of how she discovered she had the acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.

Hopes for the Future

4 April 2024

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

Living with Glanzmann thrombasthenia

Allison -
19 March 2024

Allison was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

Growing up with Glanzmann thrombasthenia

28 February 2024

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Living with Glanzmann thrombasthenia

28 February 2024

Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

Finally cured of hep C – Alex’s story

17 January 2024

‘I felt like I had won a million dollars.’ What is it like to be cured of hepatitis C after…

Jake’s liver health journey

17 January 2024

* Jake is not his real name ‘Now that my liver is working better, everything is better.’ Curing hepatitis C…

Stories by young people

17 January 2024

Looking for other stories from young people with bleeding disorders? Go to Factored In to read stories from young people…

Living with type 1 VWD

Susie -
11 December 2023

Susie’s story Susie shared her personal story of living with type 1 VWD at the 21st Australian Conference on haemophilia,…

The challenges of living with VWD

Shauna -
11 December 2023

Shauna’s story Shauna shared her personal story of managing quality of life issues while living with Type 3 VWD at…

Haemophilia Foundation Australia

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Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Personal stories'

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