Items tagged 'Personal stories'

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.
Allison is in her mid-40s and was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder. 

‘I felt like I had won a million dollars.’ What is it like to be cured of hepatitis C after…

* Jake is not his real name ‘Now that my liver is working better, everything is better.’ Curing hepatitis C…

Looking for other stories from young people with bleeding disorders? Go to Factored In to read stories from young people…

Susie’s story Susie shared her personal story of living with type 1 VWD at the 21st Australian Conference on haemophilia,…

Shauna’s story Shauna shared her personal story of managing quality of life issues while living with Type 3 VWD at…

Reflections from a parent Claire shared her personal story as a parent of young boys with haemophilia at the 21st…

Jack talked to HFA about travelling overseas and managing his haemophilia for some amazing trips! My name’s Jack. I am…

*Alex is not his real name ‘I felt like I had won a million dollars.’ What is it like to…

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