Personal stories Archives - Haemophilia Foundation Australia

Jack’s latest travel adventure

17 October 2024

Boys, Personal stories, Travel, Treatment & care, Young people
adventure sport, haemophilia, travel, treatment, Youth

Jack shares his travel adventures in Canada and the USA - snowboarding and managing haemophilia on the road with new treatments.

Parenting a teenager with a rare bleeding disorder

Elizabeth -
11 September 2024

Growing up with a bleeding disorder, Inherited platelet function disorders, Parents & families, Personal stories, Rare bleeding disorders
friends, girls, Glanzmann thrombasthenia, parents, school

Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.

Jack’s latest travel adventures

Jack -
11 September 2024

Boys, Haemophilia, New treatments, Personal stories, Travel, Young people
adventure sport, haemophilia, travel, Youth

Jack talks about his travel adventures in Canada and the USA, snowboarding and managing haemophilia on the road with new treatments.

Youth taking on the future

27 June 2024

Ben talks about the Blue Shirts youth leadership program, his experiences and hopes for the program.

Catching up with youth

27 June 2024

Declan and Bailey talk about catching up with other young people at a gaming bar and what made it fun.

Paul talks about his career

12 June 2024

Paul shares his experience working as an apprentice shipwright and boat builder, a FIFO WHS manager, and today supporting his brother in a business with over 60 employees and a growing client base.

Acquired haemophilia – Jenny’s story

11 April 2024

Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.

Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

Living with Glanzmann thrombasthenia

Allison -
19 March 2024

Allison was diagnosed with Glanzmann thrombasthenia at birth. She talked to HFA about her experiences and what she has learned from living with this very rare bleeding disorder.

Growing up with Glanzmann thrombasthenia

28 February 2024

Elizabeth’s teenage daughter Grace has Glanzmann thrombasthenia. Elizabeth spoke with HFA about what it was like to find that your child has a very rare bleeding disorder and their family experiences as Grace grows up.

Items tagged 'Personal stories'