Items tagged 'Personal stories'

Dom shares his experience of receiving gene therapy treatment for haemophilia A

11yo Fernando plays Paradise by Coldplay for World Music Day

Neil shares his experience of living with severe-presenting haemophilia A, and how he continues to live well as he gets older

Cassie talks about raising a young family with an extra challenge - her son Noah has haemophilia B

Sam, mother to 7-year-old TJ, shares her story about raising a young son with type 2A VWD

Michelle first experienced bleeding symptoms, in the form of really flooding periods, at the age of 19. Nineteen years later - she got a diagnosis

Sophie talks about being diagnosed with VWD in her 20s, pregnancy, and advocating for yourself and others

Steve shares his experience having gene therapy for severe haemophilia A – and how it has changed his life

Simoni and Javonte caught up to talk about growing up with a bleeding disorder, treatment, playing sport and why it's important to share your story.

Simoni and Javonte chat about growing up with VWD type 3 and severe haemophilia

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