Every year on 17 April, people around the world mark World Haemophilia Day. It is a time to raise awareness about haemophilia, von Willebrand disease, rare clotting factor deficiencies, inherited platelet disorders and other rare bleeding disorders.
In 2026 the global theme of Diagnosis: first step to care underlines the critical importance of diagnosis. Knowing you have a bleeding disorder and having an accurate diagnosis is essential as a first step in getting the right treatment, care and support.
The World Federation of Hemophilia (WFH) estimates that more than three-quarters of people with haemophilia worldwide have not been diagnosed. Even more people with other bleeding disorders are also undiagnosed. This means hundreds of thousands of people globally are missing out on basic care and support.
Women and girls are a special focus. A recent WFH survey shows the challenges women and girls with bleeding disorders face, delaying their access to diagnosis, specialised treatment and care. The greatest challenge is a lack of awareness – among health professionals, the women themselves and the general public.(1)
World Haemophilia Day is an opportunity to raise awareness and provide education on bleeding disorders – including in women and girls – sharing stories from our community and encouraging everyone to come together in support of people with bleeding disorders.
World Haemophilia Day began in 1989 and is organised by WFH. The date 17 April was chosen to honour the birthday of the WFH founder, Frank Schnabel.
You can be part of World Haemophilia Day and help raise awareness for all bleeding disorders. Get the whole family involved with our print-at-home colouring-in sheet or test your knowledge with our bleeding disorders quiz. You can also update your social media profile pic to show your support.
Visit our website for resources and simple instructions on how to take part.
On 17 April, landmarks in every state and territory in Australia – and around the world – will light up red in support of World Haemophilia Day.
Check our website for a list of locations near you, and don’t forget to share your photos on our social media pages. #WHD2026
Visit the World Haemophilia Day page on the HFA website.
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