Being diagnosed with a bleeding disorder is a critical first step in treatment and care. In this issue we explore this theme for World Haemophilia and Rare Disease Day, looking at testing for haemophilia in females and personal stories about the challenges of growing up with rare bleeding disorders like haemophilia, VWD Type 3 and Glanzmann thrombasthenia. And we continue with treatment and care – what is the National Blood Authority (NBA) and how do they help with treatment? What are some of the new and emerging treatments for VWD? And what are the issues and supports for transitions early and later in life – from the children’s to the adult HTC and with aged care services?
