Items tagged 'General'

Read the latest newsletter for HFA.
HFA would like to understand what our community members want from their haemophilia treatments and your perspectives on gene therapy in particular.
On 14 May 2024 we were fortunate to have Dr Michiel Coppens join us at the HFA office for an interview about gene therapy. Watch it now.
In this interview chaired by Dr Stephanie P’ng and led by questions from the community, Dr Michiel Coppens explains what gene therapy is, how it works, and how it can be used to treat people with haemophilia.
The report on the UK Infected Blood Inquiry investigating contaminated blood and blood products was released on 20 May 2024.
It was spectacular seeing people and landmarks across Australia - and the world - go red in support of bleeding disorders.
Jenny shares her story of how she discovered she had acquired haemophilia and how it was able to be successfully treated with the support of her hospital and Haemophilia Treatment Centre.
The March 2024 National Haemophilia is now available to read on our website. In this issue we highlight World Haemophilia Day, Rare Disease Day, Glanzmann thrombasthenia, women and peer support, FIFO workers, and mental health.
Glanzmann thrombasthenia is a very rare hereditary platelet function disorder that affects the way that platelets work in the body.
The Australian Haemophilia Centre Directors' Organisation (AHCDO) has a new committee and had a successful education day discussing women, VWD and gene therapy.

Join the HFA community

Sign up for the latest news, events and our free National Haemophilia magazine

Skip to content