Items tagged 'General'

Today is Rare Disease Day – a rare leap year day and very fitting for a worldwide event to raise awareness and generate change for people with rare diseases.

Every year on 28 February – and on 29 February in a leap year – we mark Rare Disease Day. It’s…

* Jake is not his real name ‘Now that my liver is working better, everything is better.’ Curing hepatitis C…

Every year on 17 April World Haemophilia Day is recognised worldwide to increase awareness of haemophilia, von Willebrand disease and…

Bleeding Disorders Awareness Month is an opportunity for individuals and families as well as Haemophilia Foundations and other organisations to take…

Have you done the PROBE survey yet? The 2023 round of the PROBE Australia Study has now commenced! You can…

The Melbourne Conference in August 2023 was the first time the national Conference had been held in person since the…

JANE PORTNOY Jane Portnoy is Social Worker – Haemophilia & Other Inherited Bleeding Disorders at the Ronald Sawers Haemophilia Centre,…

EMMA WELLS Emma Wells is Paediatric Social Worker – Haematology, John Hunter Children’s Hospital, Newcastle NSW PainChair ~ Jonathan SpencerBetter…

STEPHEN MATTHEWS Stephen Matthews is Clinical Nurse Consultant Haemophilia at the Royal Prince Alfred Hospital, Sydney, NSW Is it a…

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