Items tagged 'Haemophilia'

HaemPref (Haemophilia Treatment Preferences) Survey

26 September 2024

If you or your child have haemophilia, please share your view on new treatments in the HaemPref (Haemophilia Treatment Preferences) Survey.

Haemophilia gene therapy snapshot survey

Suzanne O'Callaghan -
11 September 2024

HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.

Haemophilia inheritance video

11 September 2024

Boys, Haemophilia, Inheritance
haemophilia, inheritance, males, Youth

HFA's short video for teenage males answers the question, will males with haemophilia pass it on to their children - and how are genes involved?

ISTH 2024 Congress: novel therapies

Ashley Fletcher -
11 September 2024

Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.

MyABDR and recording your treatment

Suzanne O'Callaghan -
11 September 2024

With new haemophilia treatments, recording on MyABDR has some challenges. HTCs and users share their tips.

Jack’s latest travel adventures

Jack -
11 September 2024

Boys, Haemophilia, New treatments, Personal stories, Travel, Young people
adventure sport, haemophilia, travel, Youth

Jack talks about his travel adventures in Canada and the USA, snowboarding and managing haemophilia on the road with new treatments.

New video: Haemophilia inheritance in males

16 July 2024

If you were born male with haemophilia, will your children have haemophilia too?

AHCDO research

Caitlin Rice -
26 June 2024

Caitlin Rice is undertaking research projects on VWD type 3 and acquired haemophilia A for AHCDO and will use ABDR data for these projects.

New developments in haemophilia nursing

Megan Walsh -
26 June 2024

The EAHAD Congress was a stimulating forum to discuss new issues in haemophilia nursing - eg, bleeds with new therapies, women and mild haemophilia.

New and emerging issues in physiotherapy

Abi Polus -
26 June 2024

With the new treatments I am seeing people with bleeding disorders in the haemophilia clinic and on the hospital ward who are having a different presentation of bleeding to what we had traditionally seen.

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Haemophilia'

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