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Items tagged 'Haemophilia'

  • National Haemophilia Journal

Haemophilia gene therapy snapshot survey

  • Suzanne O'Callaghan -
  • 11 September 2024
HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.
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  • National Haemophilia Journal

Haemophilia inheritance video

  • 11 September 2024
HFA's short video for teenage males answers the question, will males with haemophilia pass it on to their children - and how are genes involved?
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  • National Haemophilia Journal

ISTH 2024 Congress: novel therapies

  • Ashley Fletcher -
  • 11 September 2024
Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.
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  • National Haemophilia Journal

MyABDR and recording your treatment

  • Suzanne O'Callaghan -
  • 11 September 2024
With new haemophilia treatments, recording on MyABDR has some challenges. HTCs and users share their tips.
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  • National Haemophilia Journal

Jack’s latest travel adventures

  • Jack -
  • 11 September 2024
Jack talks about his travel adventures in Canada and the USA, snowboarding and managing haemophilia on the road with new treatments.
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  • News & Stories

New video: Haemophilia inheritance in males

If you were born male with haemophilia, will your children have haemophilia too?
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  • National Haemophilia Journal

AHCDO research

  • Caitlin Rice -
  • 26 June 2024
Caitlin Rice is undertaking research projects on VWD type 3 and acquired haemophilia A for AHCDO and will use ABDR data for these projects.
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  • National Haemophilia Journal

New developments in haemophilia nursing

  • Megan Walsh -
  • 26 June 2024
The EAHAD Congress was a stimulating forum to discuss new issues in haemophilia nursing - eg, bleeds with new therapies, women and mild haemophilia.
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  • National Haemophilia Journal

New and emerging issues in physiotherapy

  • Abi Polus -
  • 26 June 2024
With the new treatments I am seeing people with bleeding disorders in the haemophilia clinic and on the hospital ward who are having a different presentation of bleeding to what we had traditionally seen.
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  • National Haemophilia Journal

Exploring haemophilia prophylaxis

  • Yuhsuan Lin (Yoshi) -
  • 26 June 2024
One of the most memorable sessions at WFH 2024 World Congress focused on the optimal dosage of prophylaxis treatment for individuals with haemophilia
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Haemophilia Foundation Australia

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Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

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