Items tagged 'Haemophilia'

Travelling overseas with haemophilia

Claire -
11 December 2024

Claire describes international travel with her sons with severe haemophilia: treatments, packing, luggage and planning.

Endoscopies – what might I need to know?

Sue Webzell -
11 December 2024

Haemophilia, Inherited platelet function disorders, Rare bleeding disorders, Treatment & care, Von Willebrand disease
colonoscopy, endoscopy, gastroscopy, haemophilia, inherited platelet function disorders, rare clotting factor deficiencies, VWD

Special considerations with endoscopy, gastroscopy or colonoscopy for people with haemophilia, VWD and other bleeding disorders.

Can you help with PROBE?

11 December 2024

People without a bleeding disorder are also needed for the PROBE Australia Study to research the impact of haemophilia.

Bleeding Disorders Awareness Month

11 December 2024

In October 2024 we came together to raise awareness about haemophilia, VWD and other rare bleeding disorders.

HaemPref (Haemophilia Treatment Preferences) Survey

26 September 2024

If you or your child have haemophilia, please share your view on new treatments in the HaemPref (Haemophilia Treatment Preferences) Survey.

Haemophilia gene therapy snapshot survey

Suzanne O'Callaghan -
11 September 2024

HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.

Haemophilia inheritance video

11 September 2024

Boys, Haemophilia, Inheritance
haemophilia, inheritance, males, Youth

HFA's short video for teenage males answers the question, will males with haemophilia pass it on to their children - and how are genes involved?

ISTH 2024 Congress: novel therapies

Ashley Fletcher -
11 September 2024

Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.

MyABDR and recording your treatment

Suzanne O'Callaghan -
11 September 2024

With new haemophilia treatments, recording on MyABDR has some challenges. HTCs and users share their tips.

Jack’s latest travel adventures

Jack -
11 September 2024

Boys, Haemophilia, New treatments, Personal stories, Travel, Young people
adventure sport, haemophilia, travel, Youth

Jack talks about his travel adventures in Canada and the USA, snowboarding and managing haemophilia on the road with new treatments.

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'Haemophilia'

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