The December 2024 National Haemophilia is now available to read online and in print. In this issue we feature:
- Bleeding Disorders Awareness Month
- Staying in contact with your HTC
- Navigating school
- World AIDS Day 2024
- Endoscopies: What might I need to know?
- Travelling overseas
- Factored In: Growing up with VWD
Thank you so much to the community members and health professionals who contribute to National Haemophilia. Your insights and expertise are invaluable.
Raising Awareness
What a huge October we had for Bleeding Disorders Awareness Month. Thank you so much to everyone who participated. From trivia nights and information stands to sausage sizzles and cupcake days, it was a great opportunity to connect and raise awareness. Check out this issue of National Haemophilia and see what everyone got up to!
On 1 December we joined the international community in marking World AIDS Day. With the national theme of It starts with me, how can we help to uphold human rights? We shared reflections from community members Neil, Mike and Anth on Inclusion.Respect.Equity. Find out more.
Why stay in contact with your HTC?
The team at your HTC loves to see or hear from you regularly! We share why (along with a heap of great pics of your favourite people) in this issue of National Haemophilia. Read the article.
Endoscopies: What might I need to know?
Colonoscopies and gastroscopies are common enough medical procedures, however for people with bleeding disorders they may require special precautions to minimise the risk of complications. Sue Webzell walks us through what’s involved and how you can plan for the best possible outcome.
Travelling overseas
Claire is mother to two young boys with severe haemophilia A and is a seasoned traveller. She shares her experiences travelling overseas, from planning and packing to managing issues at the airport. Read about travelling overseas.
For young people
Navigating school with a chronic illness such as a bleeding disorder can involve significant challenges. Emma Wells provides insight into how parents and carers can assist young people through this period, and what supports are available. Learn more.
Cassie has type 3 von Willebrand disease. She shares her experience growing up with VWD, overcoming her phobia of needles and managing heavy periods while at school and work. Read Cassie’s story.
I hope you enjoy reading National Haemophilia!