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We asked health professionals and the Australian bleeding disorders community why you should stay in contact with your Haemophilia Treatment Centre (HTC).
Each HTC around Australia has a multidisciplinary team who provide expert treatment and care for people with bleeding disorders. It’s a relationship that grows with you from the time you are a child. Both our community and HTCs agree that staying in touch is key to taking care of your health and wellbeing.
‘You are not alone! The Haemophilia Treatment Centre team is there to help and can give you advice or talk over any problems or concerns or refer you to other services.’
‘Be informed and aware! Keep in touch with the HTC team to know how best to manage your or your child’s condition. And keep up with the latest on treatments and services.’
‘Stay in touch with us so we can
– Work together to tailor your treatment as your lifestyle and goals evolve over time.
– And provide education and information around new treatment options.’
Jaime Chase and Alex Klever, Haemophilia Nurses
‘We love it when our patients stay in regular contact with their HTC so we can:
– Update doses of treatment for children as they grow
– Plan safely for any upcoming surgery with lots of notice
– Keep other specialist and general practitioners who are part of your care informed and updated
– Keep you updated with all things bleeding disorders.’
HTC Directors Dr Janis Chamberlain, John Hunter Children’s Hospital, and Dr Liane Khoo, Royal Prince Alfred Hospital
‘Staying in touch with your Treatment Centre connects you to social workers and clinicians who understand the unique challenges of living with a bleeding disorder, offering support for emotional, financial, and practical aspects of daily life.
Consistent engagement with the Treatment Centre ensures up-to-date information on managing daily life with a bleeding disorder, promoting independence and confidence in navigating physical and emotional challenges.’
Angela McGill and Emma Wells, Haemophilia Social Workers
‘Staying in contact with your HTC means we can collaborate with you and
– safely support physical activities,
– assess, monitor and maintain your musculoskeletal health,
– and assist with rehabilitation post bleed to ensure you return to your optimum function.’
Abi Polus and Ali Morris, Haemophilia Physiotherapists
‘When you stay in regular contact with your HTC, we can continue to build a strong community.’
Dr Liane Khoo, HTC Director, Royal Prince Alfred Hospital
‘Staying connected fosters a sense of belonging to a supportive community, reducing feelings of loneliness by sharing experiences and coping strategies with others in similar situations.’
Angela McGill and Emma Wells, Haemophilia Social Workers
From starting school…
‘By staying in contact we can keep schools updated and informed.’
Dr Janis Chamberlain, HTC Director, John Hunter Children’s Hospital
to starting a family…
‘Keep us updated with family planning so we can guide you and support you during pregnancy and for any new additions’
Jaime Chase and Alex Klever, Haemophilia Nurses
The team at your HTC is there to help you every step of the way.
‘We can notify other Australian HTCs if families are travelling, including for holidays.
And make plans for taking factor products overseas for international travel’
Dr Janis Chamberlain, HTC Director, John Hunter Children’s Hospital
‘I talk to them about how to pack their treatment product and that they will need to take it on board the plane as hand luggage so that it doesn’t get damaged or lost.’
Beryl Zeissink, Haemophilia Nurse
To find your local HTC, visit Find a Treatment Centre
A huge thank you to all our contributors:
Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.
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