Haemophilia Foundation Australia has published a new education resource, Haemophilia testing in women and girls: your questions answered. It’s a comprehensive booklet about genetic testing and factor level testing in haemophilia for women, girls and parents of girls.
There are often many questions and things to think about when checking to see if a woman or girl is affected by haemophilia.
HFA developed the booklet to answer these and other questions in collaboration with women and parents in the Australian community, Haemophilia Treatment Centres and genetics and legal experts. It includes infographics, tables and personal stories.
You can also download specific sections if you are interested in a particular topic, for example, genetic testing and counselling.
If you would like a print copy, email HFA at firstname.lastname@example.org or call 0398857800 to ask them to post you a copy.
Thanks to everyone who contributed to the development of this resource, and a special mention of Jane, Sharri and Michelle for sharing their personal stories.
We invite you to take a look at the resource and pass it onto anyone you think would find it helpful.
And look out for the short and simple version which is coming soon!
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