Items tagged 'girls'

Growing up with VWD

18 December 2024

Girls, Growing up with a bleeding disorder, Personal stories, Von Willebrand disease, Women & girls, Young people
girls, heavy menstrual bleeding, VWD, young women

Cassie's personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.

Growing up with VWD

Cassie -
11 December 2024

Cassie's personal story of growing up with von Willebrand disease (VWD) and learning to manage her heavy periods.

Parenting a teenager with a rare bleeding disorder

Elizabeth -
11 September 2024

Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.

Heavy menstrual bleeding in teenagers

Jaime Chase -
11 September 2024

When and how to seek help for adolescent girls with bleeding disorders when they have heavy periods.

Women and girls with bleeding disorders

Suzanne O'Callaghan -
26 June 2024

Sessions on women and girls at the WFH 2024 World Congress had a strong message that it’s time for action on female-specific research, treatment and care.

Women: caregivers to patients to advocates

Lara Nicholson -
26 June 2024

This session discussed the work of women advocates to overcome the general and longstanding misunderstanding that women are only carriers and do not have bleeding disorders.

The challenges of living with VWD

Shauna -
11 December 2023

Shauna’s story Shauna shared her personal story of managing quality of life issues while living with Type 3 VWD at…

Women and girls with bleeding disorders

Suzanne O'Callaghan and Alex Klever -
11 December 2023

Plenary – Women and girls with bleeding disordersChair ~ Dr Meredith WigginsPersonal perspectives on the challenges and issues of living…

WFH national haemophilia organisation training

Shauna Adams -
13 September 2022

Shauna Adams is HFACT Secretary and an Australian community member with VWD. Suzanne O'Callaghan is HFA Policy Research and Education…

Women and girls with haemophilia

Robyn Shoemark -
13 September 2022

ROBYN SHOEMARK Robyn Shoemark is Clinical Nurse Consultant Haemophilia/Haematology at the Kids Factor Zone, The Children’s Hospital at Westmead, Sydney,…

Haemophilia Foundation Australia

Created with Heartburst

Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

Items tagged 'girls'

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