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Bleeding Disorders
FAQs & Fast Facts
Haemophilia
Von Willebrand Disease
Other Bleeding Disorders
Acquired haemophilia
Factor I Deficiency
Factor II Deficiency
Factor V Deficiency
Combined Factor V and Factor VIII Deficiency
Factor VII Deficiency
Factor X Deficiency
Factor XI Deficiency
Factor XIII Deficiency
Inherited platelet function disorders
Glanzmann thrombasthenia
Women with Bleeding Disorders
Hepatitis C & HIV
Hepatitis C
HIV
Living with a Bleeding Disorder
Gene & Emerging Therapies Hub
Youth – Factored In
Getting Older Hub
Travel
Personal Stories
Telling Others
Resources
National Haemophilia Journal
Find an article
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Reports
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Ordering HFA print publications
Support & Services
Find a treatment centre
State & Territory Foundations
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ABDR & MyABDR
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Items tagged 'girls'
National Haemophilia Journal
Australian youth at Congress
Youth Congress delegates -
30 June 2026
Bleeding disorders
,
Conferences and meetings
,
International connections
,
Young people
bleeding disorders
,
girls
,
treatment
,
WFH World Congress
,
Women
,
Youth
Nine Australian youth delegates share their reflections on the WFH 2026 World Congress and their interviews with other Congress delegates.
Read more
National Haemophilia Journal
Congress – improving diagnosis and care for WGBD
Joanna McCosker -
30 June 2026
Conferences and meetings
,
Treatment & care
,
Women & girls
comprehensive care
,
diagnosis
,
girls
,
WFH World Congress
,
Women
Joanna McCosker reports on the Congress workshop to improve diagnosis and care for women and girls with bleeding disorders.
Read more
National Haemophilia Journal
Congress – Nurse-led care
Shirley Wong -
30 June 2026
Conferences and meetings
,
Joints & muscles
,
Nursing management
,
Treatment & care
,
Women & girls
girls
,
musculoskeletal management
,
nursing care
,
WFH World Congress
,
young women
Shirley Wong reports on sessions about nurse-led clinics and multidisciplinary joint management at the WFH 2026 World Congress.
Read more
National Haemophilia Journal
Congress: Mental health – adherence and chronic fatigue
Jane Portnoy -
Bleeding disorders
,
Conferences and meetings
,
Treatment & care
,
Women & girls
adherence
,
anaemia
,
chronic fatigue
,
girls
,
haemophilia
,
WFH World Congress
,
Women
Jane Portnoy reports on Congress sessions about adherence to treatment and chronic fatigue in women and girls.
Read more
National Haemophilia Journal
HFA Women bleed too survey
Suzanne O'Callaghan -
30 June 2026
Advocacy
,
Bleeding disorders
,
Research
,
Women & girls
girls
,
health care settings
,
self-advocacy
,
surveys
,
Women
The HFA Women Bleed Too survey explored the experiences of Australian women and girls with bleeding disorders in health care settings.
Read more
National Haemophilia Journal
From the President
Alan Dursun -
30 June 2026
Advocacy
,
Conferences and meetings
,
HFA & Foundation news
,
Women & girls
blood supply
,
girls
,
Lifeblood
,
representation
,
WFH World Congress
,
Women
Alan Dursun, HFA President, reflects on the WFH World Congress, women and girls with bleeding disorders and other relevant news.
Read more
National Haemophilia Journal
Why test for haemophilia in women and girls?
18 March 2026
Haemophilia
,
Women & girls
ABDR
,
diagnosis
,
factor level testing
,
genetic testing
,
girls
,
haemophilia
,
Women
Testing for haemophilia in women and girls is crucial as many are not yet diagnosed and registered with the national Bleeding Disorders Registry.
Read more
National Haemophilia Journal
Conference 2025 – Stories, science, and strong connections
Yuhsuan Lin (Yoshi) -
16 December 2025
Conferences and meetings
,
Getting older
,
Recreation & lifestyle
,
Women & girls
ageing
,
girls
,
haemophilia
,
medical procedures
,
surgery
,
Women
The 2025 Conference spotlighted women, ageing with haemophilia and communicating before medical procedures.
Read more
National Haemophilia Journal
Prof Cedric Hermans on new haemophilia treatments and more
16 December 2025
Bleeding disorders
,
Emerging therapies
,
Haemophilia
,
New treatments
,
Women & girls
diagnosis
,
emerging therapies
,
gene therapy
,
girls
,
haemophilia
,
Women
Professor Cedric Hermans spoke with HFA about new and emerging haemophilia therapies, women and girls, and the importance of diagnosis.
Read more
National Haemophilia Journal
Conference 2025 – Women and bleeding disorders
Suzanne O'Callaghan -
16 December 2025
Bleeding disorders
,
Conferences and meetings
,
Treatment & care
,
Women & girls
girls
,
haemophilia
,
heavy menstrual bleeding
,
lifetime
,
treatment
,
VWD
,
Women
The session on women with bleeding disorders at the 2025 Conference explored a female-centric approach to treatment and care over the lifetime.
Read more
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