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Items tagged 'girls'

  • National Haemophilia Journal

Parenting a teenager with a rare bleeding disorder

  • Elizabeth -
  • 11 September 2024
Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.
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  • National Haemophilia Journal

Heavy menstrual bleeding in teenagers

  • Jaime Chase -
  • 11 September 2024
When and how to seek help for adolescent girls with bleeding disorders when they have heavy periods.
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  • National Haemophilia Journal

Women and girls with bleeding disorders

  • Suzanne O'Callaghan -
  • 26 June 2024
Sessions on women and girls at the WFH 2024 World Congress had a strong message that it’s time for action on female-specific research, treatment and care.
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  • National Haemophilia Journal

Women: caregivers to patients to advocates

  • Lara Nicholson -
  • 26 June 2024
This session discussed the work of women advocates to overcome the general and longstanding misunderstanding that women are only carriers and do not have bleeding disorders.
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  • National Haemophilia Journal

The challenges of living with VWD

  • Shauna -
  • 11 December 2023

Shauna’s story Shauna shared her personal story of managing quality of life issues while living with Type 3 VWD at…

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  • National Haemophilia Journal

Women and girls with bleeding disorders

  • Suzanne O'Callaghan and Alex Klever -
  • 11 December 2023

Plenary – Women and girls with bleeding disordersChair ~ Dr Meredith WigginsPersonal perspectives on the challenges and issues of living…

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  • National Haemophilia Journal

WFH national haemophilia organisation training

  • Shauna Adams -
  • 13 September 2022

Shauna Adams is HFACT Secretary and an Australian community member with VWD. Suzanne O'Callaghan is HFA Policy Research and Education…

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  • National Haemophilia Journal

Women and girls with haemophilia

  • Robyn Shoemark -
  • 13 September 2022

ROBYN SHOEMARK Robyn Shoemark is Clinical Nurse Consultant Haemophilia/Haematology at the Kids Factor Zone, The Children’s Hospital at Westmead, Sydney,…

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  • National Haemophilia Journal

New HFA education resource

  • 14 June 2022

Haemophilia Foundation Australia has published a new education resource, Haemophilia testing in women and girls: your questions answered. It’s a…

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  • National Haemophilia Journal

Female Factors survey 2021

  • Suzanne O'Callaghan -
  • 14 March 2022

SUZANNE O’CALLAGHAN Suzanne O’Callaghan is HFA Policy Research and Education Manager In August 2021 HFA undertook an evaluation survey of…

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