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Items tagged 'haemophilia'

  • National Haemophilia Journal

Congress: stories of challenge and resilience

  • Lenny -
  • 23 September 2026
Lenny shares his experiences of WFH World Congress - presenting on his own challenges and hearing the resilience of other speakers.
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  • National Haemophilia Journal

Haemophilia guide launch

  • 23 September 2026
The 2026 version of Haemophilia: a guide for parents of a newly diagnosed child was launched in August 2026.
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  • National Haemophilia Journal

ISTH 2026 – what’s on the horizon for bleeding disorders?

  • Ashley Fletcher -
  • 23 September 2026
The ISTH 2026 world congress highlighted the continuing development of new therapies for bleeding disorders.
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  • National Haemophilia Journal

ISTH 2026 Congress highlights

  • Yuhsuan Lin (Yoshi) -
  • 23 September 2026
ISTH World Congress 2026 had strong messages - that people with haemophilia are living longer and women and girls bleed too.
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  • News & Stories
  • Video

Living life on his own terms: Neill’s haemophilia journey

Neill shares his experience growing up with haemophilia in the 1950s and 60s, changing treatments, building a career, travelling, and living a full life
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  • National Haemophilia Journal

Congress – Musculoskeletal health in children and young people

  • Hayley Coulson -
  • 30 June 2026
Hayley Coulson reports on Congress about physical activity, musculoskeletal assessment and strength training for young people with bleeding disorders.
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  • National Haemophilia Journal

Congress – Musculoskeletal highlights

  • Abi Polus -
  • 30 June 2026
Abi Polus reports on the WFH 2026 Congress, highlighting orthopaedic minimally invasive procedures, the elbow, the pelvic floor and pain.
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  • National Haemophilia Journal

Congress: Mental health – adherence and chronic fatigue

  • Jane Portnoy -
Jane Portnoy reports on Congress sessions about adherence to treatment and chronic fatigue in women and girls.
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  • National Haemophilia Journal

Newly diagnosed with haemophilia guide

  • 30 June 2026
The 2026 version of the HFA red folder - Haemophilia: a guide for parents of a newly diagnosed child is now completed!
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  • National Haemophilia Journal

Red Cake Day – Jasmin and Lincoln's story

  • Jasmin -
  • 30 June 2026
Jasmin shares her story of raising awareness about haemophilia with her son Lincoln, who has haemophilia B.
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