Items tagged 'haemophilia'

Neill shares his experience growing up with haemophilia in the 1950s and 60s, changing treatments, building a career, travelling, and living a full life
Hayley Coulson reports on Congress about physical activity, musculoskeletal assessment and strength training for young people with bleeding disorders.
Abi Polus reports on the WFH 2026 Congress, highlighting orthopaedic minimally invasive procedures, the elbow, the pelvic floor and pain.
Jane Portnoy reports on Congress sessions about adherence to treatment and chronic fatigue in women and girls.
The 2026 version of the HFA red folder - Haemophilia: a guide for parents of a newly diagnosed child is now completed!
Jasmin shares her story of raising awareness about haemophilia with her son Lincoln, who has haemophilia B.
We are saddened by the passing of haemophilia community leader Ann Roberts on 23 March 2026.
Paediatric haemophilia nurses describe what they learned about transition from child to adult haemophilia care during a visit to an adult HTC.
Simoni and Javonte caught up to talk about growing up with a bleeding disorder, treatment, playing sport and why it's important to share your story.
On Rare Disease Day we strive for equity in social opportunities, healthcare and access to diagnosis and therapies for people with rare bleeding disorders.

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