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Items tagged 'haemophilia'

  • National Haemophilia Journal

Being rare

  • Adam, Bel and Tayla -
  • 26 March 2025
Adam, Bel and Tayla share their experiences of growing up with a very rare bleeding disorder and what they learned along the way.
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  • National Haemophilia Journal

Can you help with the PROBE study

  • 26 March 2025
HFA is still recruiting people to complete the PROBE Australia Study.
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  • National Haemophilia Journal

Exercise and movement for persistent pain

  • Cameron Cramey -
  • 26 March 2025
Exercise and movement are an effective way to manage persistent pain for people with bleeding disorders.
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  • National Haemophilia Journal

Gene and emerging therapies in haemophilia

  • Ashley Fletcher -
  • 26 March 2025
Exciting advancements in gene therapy and other emerging treatments for haemophilia were presented at the Blood 2024 conference.
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  • National Haemophilia Journal

Haemophilia Treatment Preferences Survey

  • CaPPRe -
  • 26 March 2025

(HaemPref Survey) How do individuals make decisions about treatment? What factors encourage or discourage patients from treatments? What are individuals’…

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  • National Haemophilia Journal

Navigating challenges at school

  • Emma Wells -
  • 11 December 2024
How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.
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  • National Haemophilia Journal

Travelling overseas with haemophilia

  • Claire -
  • 11 December 2024
Claire describes international travel with her sons with severe haemophilia: treatments, packing, luggage and planning.
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  • National Haemophilia Journal

Endoscopies – what might I need to know?

  • Sue Webzell -
  • 11 December 2024
Special considerations with endoscopy, gastroscopy or colonoscopy for people with haemophilia, VWD and other bleeding disorders.
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  • National Haemophilia Journal

Can you help with PROBE?

  • 11 December 2024
People without a bleeding disorder are also needed for the PROBE Australia Study to research the impact of haemophilia.
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  • News & Stories

Jack’s latest travel adventure

Jack shares his travel adventures in Canada and the USA - snowboarding and managing haemophilia on the road with new treatments.
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Haemophilia Foundation Australia

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Haemophilia Foundation Australia acknowledges the Traditional Owners and Custodians of Country throughout Australia, the land, waters and community where we walk, live, meet and work. We pay our respects to Elders past and present and extend that respect to all Aboriginal and Torres Strait Islander peoples.

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