Items tagged 'haemophilia'

How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.
Claire describes international travel with her sons with severe haemophilia: treatments, packing, luggage and planning.
Special considerations with endoscopy, gastroscopy or colonoscopy for people with haemophilia, VWD and other bleeding disorders.
People without a bleeding disorder are also needed for the PROBE Australia Study to research the impact of haemophilia.
Jack shares his travel adventures in Canada and the USA - snowboarding and managing haemophilia on the road with new treatments.
HFA's haemophilia gene therapy snapshot survey asked people and parents of children with haemophilia what outcomes they would like from treatment now and in the future.
Heading to the end of the year, we review our progress. Gene and emerging therapies are on the agenda, and Bleeding Disorders Awareness Month is coming up.
HFA's short video for teenage males answers the question, will males with haemophilia pass it on to their children - and how are genes involved?
Exciting new haemophilia treatments using a range of innovative technologies were highlighted at ISTH 2024 Congress.
Jack talks about his travel adventures in Canada and the USA, snowboarding and managing haemophilia on the road with new treatments.

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