Stephen Matthews is Clinical Nurse Consultant Haemophilia at the Royal Prince Alfred Hospital, Sydney, NSW
Pregnancy, childbirth and newborns
Chair ~ Dr Jane Mason
Nursing perspective – pregnancy and delivery management ~ Robyn Shoemark
Delivery and birth ~ Dr Iniyaval Thevathasan
Best practice management of Previously Untreated Patients ~ Dr Simon Brown
Personal Story ~ Rebecca
In her presentation on the nursing management of pregnancy and delivery, Robyn Shoemark highlighted the importance in keeping in touch with your Haemophilia Treatment Centre (HTC). Through discussions with the HTC, family planning can hopefully be streamlined to maximise the best outcomes with the pregnancy.
Optimally discussions should start prior to becoming pregnant as this will give the opportunity to establish baseline factor levels and refer to genetic counselling. This will also give your partner information on the bleeding disorder, how it is passed on, the chance of a child being affected and what to expect regarding treatment. Genetic counselling can also provide information on options such as natural conception and pre-implantation genetic diagnosis.
Once the pregnancy is confirmed, discussions can be had around:
The earlier plans can start to be formulated and put in place the better the process should be.
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