Items tagged 'Parents & families'

Cassie talks about raising a young family with an extra challenge - her son Noah has haemophilia B
Sam, mother to 7-year-old TJ, shares her story about raising a young son with type 2A VWD
Sophie tells her personal story of advocating for herself while pregnant and managing childbirth with Type 1 von Willebrand disease (VWD).
'Make it a family conversation'. Zev shares his advice for talking to daughters about haemophilia
How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.
Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.
Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

STEPHEN MATTHEWS Stephen Matthews is Clinical Nurse Consultant Haemophilia at the Royal Prince Alfred Hospital, Sydney, NSW Pregnancy, childbirth and…

KARA CORDINER, PENNY MCCARTHY AND MEGAN WALSH Kara Cordiner, Penny McCarthy and Megan Walsh are Clinical Nurse Consultants at the…

Haemophilia treatment has changed over the years. The story of ‘Poppa’ Erl, grandfather, and grandson Roman, shows just how much….

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