Items tagged 'Parents & families'

The 2026 version of the HFA red folder - Haemophilia: a guide for parents of a newly diagnosed child is now completed!
Jasmin shares her story of raising awareness about haemophilia with her son Lincoln, who has haemophilia B.
Cassie talks about raising a young family with an extra challenge - her son Noah has haemophilia B
Sam, mother to 7-year-old TJ, shares her story about raising a young son with type 2A VWD
Sophie tells her personal story of advocating for herself while pregnant and managing childbirth with Type 1 von Willebrand disease (VWD).
'Make it a family conversation'. Zev shares his advice for talking to daughters about haemophilia
How to deal with problems at school if your child has a bleeding disorder like haemophilia, von Willebrand disease (VWD) or other rare bleeding disorders.
Elizabeth shares her experiences of parenting her teenage daughter Grace who has Glanzmann thrombasthenia, a rare hereditary platelet function disorder.
Claire shared her personal story as a parent of young boys with haemophilia at the 21st Australian Conference on haemophilia, VWD and rare bleeding disorders. This is a transcript of her presentation.

STEPHEN MATTHEWS Stephen Matthews is Clinical Nurse Consultant Haemophilia at the Royal Prince Alfred Hospital, Sydney, NSW Pregnancy, childbirth and…

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